This is much easier for me to write after talking to the nurse in the morning because I have my notes that I took from the conversation. In the afternoon I have to go from memory, and I have to say right now my memory sucks...really sucks.
So today, we found out they are attempting to reduce Steven's sedation medication. Initially he was receiving 6mg/hr, yesterday it was reduced to 4, and today it was reduced to 2mg/hr. The reason...If they can get him off the sedation and he tolerates it, there is a possibility of avoiding having a tracheotomy. Initially we were told that he will need to be on a ventilator for at least 2-3 weeks. If that's the case, they would have to put in a trach after about 1 week because being on a vent long term could damage his larynx. So...again, if they can get him off the sedation, no trach. No trach means his hospital stay could be reduced by months. Not sure if it will work or not but the nurse said he deserves the chance to try.
After the meds were reduced, Steven got agitated. Because of this, I guess he thought it would be a good idea to sit up. His eyes were still closed...still sedated...but tried to sit up. He also tried to get out of bed. 1 leg off the side of the bed. I think he just may give me a heart attack.
They increased his meds back to 4mg/hr. Will try again tomorrow.
As Mindy said, 2 steps forward, 1 step back.
Please keep praying. Love you all
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I think he wants to get up and dance, and I will be there to dance with him when he does!! Love you babe!! Aunt Barb.
ReplyDeleteHe Just wants to getty on up and getty on out of there!! Im glad to see hes doing good! I reading everyday!! give him hugs and kisses from us and the kids! <3 you Krys, Bud, Maddie and Carter.
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