5/22/10 - Day 19 - PM Post

Hi Everyone,

I decided not to post in the mornings anymore unless there is an issue of some kind or something great to tell everyone. Most of the calls in the morning to the nurse are uneventful.

So, today I didn't get up to the hospital until later. I went to a benefit for a friend. It was kind of hard for me. It's amazing how much you want to be there when it's someone you love so much.

Today, wasn't Steven's best day...for some reason he has not been as interactive as before. When he did talk, it was just a whisper. He would shake his head yes sometimes. I still think he really just says yes to almost everything you ask him.

The nurses tried to put him in a wheelchair today. This was before I got there, and I guess he was not very comfortable. So then they tried a different chair...one that reclined. This is what was going on when Pat and I arrived. Well the chair didn't work right and every time he sat up, he almost fell forward. So...after some prodding with the nurses, they found a different chair. This one was better.

During all of this moving, he did take a few steps from one chair to the other. The first time, he did it pretty well...the second time, not so much. He didn't want to put his feet down.

Finally, after all of the moving around and he was settled, we were able to spend some time with him. As I said, earlier, he isn't socializing very much. Not many facial expressions, eye contact or talking. The Dr. stated he was in stage 4-5 of the Rancho Los Amigos Scale and that this stage is extremely tough to get through. It's definitely got us worried.

I asked for the Dr. to come in. Had a ton of questions for him. Hopefully we can get some of his issues under control. I found out he didn't sleep much last night. Because he was restless when we left, I just called to see how he is doing. They said, he's still awake. The nurse said this is normal for a head trauma patient. It's just weird for us because he pretty much has been sleeping since the accident. Never expected to hear he won't sleep.

Well, let's hope tomorrow is a little better. I guess we just feel like we are at a stand still. this too shall pass

Good night everyone...thanks for the prayers...love you all <3