This week was a little better than last week. I know I will not ever be able to understand what he is going through.
A therapist told us, Steven was not awake for the first 11 days and his brain really was not awake for quite a while after that. During that time period he has no recollection of what happened.
We were there for the coma, ICU, therapy, etc. He wasn't. So now, he is a 26 year old man who used to make his own decisions, and now he has to listen to his parents and others. He wasn't liking that so much, however it's necessary because there were times that he was not making safe decisions. It is getting better but he definitely still needs much guidance.
Tomorrow will be Steven's 26th birthday. I cannot tell you how lucky we feel that he is still here to celebrate this day with us.
I decided to print the blog for Steven and give it to him as a birthday gift. I hope he truly comprehends how many people prayed for him. Prayed for our family. Cried for him.
I don't think anyone will ever understand how truly grateful we are for all of those prayers.
This is going to be my last post. I have faith that Steven will make it and will be better than ever.
This post is will remain up for a long time. If anyone cannot get a hold of me through Facebook or email, leave a message here and I will respond as soon as I can.
Thank you everyone! We love you all <3
Sunday, August 8, 2010
Sunday, August 1, 2010
8/1/10 - Day 90
Day 90...Feels like 390.
Every hurdle we encounter feels like it's the worst one yet. While in the hospital I never once believed that there wasn't anything we couldn't handle once he got better and came home...however, our faith is really being tested right now.
Unfortunately Steven is definitely not the same person he was before the accident. We are all trying to find our way.
I know I have asked for so many prayers for him, but if you could please continue to pray, I will be forever indebted. I know we can get through this too
Thank you <3
Love Barb
Every hurdle we encounter feels like it's the worst one yet. While in the hospital I never once believed that there wasn't anything we couldn't handle once he got better and came home...however, our faith is really being tested right now.
Unfortunately Steven is definitely not the same person he was before the accident. We are all trying to find our way.
I know I have asked for so many prayers for him, but if you could please continue to pray, I will be forever indebted. I know we can get through this too
Thank you <3
Love Barb
Tuesday, July 20, 2010
7/20/10 - Day 78
Hi All,
I know it's been 2 weeks since I posted. I was out of town. I do have some things to write about at least.
Last Wednesday Steven went to therapy. His physical and occupational therapists both said that he will probably only need therapy for 2-4 more weeks! They both said there is not much more that they can do for him. Amazing...simply amazing.
The speech therapy is going to go a little longer...this is the one we thought he didn't need because he speaks just fine to us. He does use some of his own words sometimes but for the most part we thought he was doing great. However, according to his speech therapist, he says Steven has a one track mind and that he needs to expand his horizons...so that's what they will be working on. And I thought speech therapy was just that...learning to speak! The things I have learned in the last month and a half.
Last Thursday, Patrick took him for a follow up appt at ECMC with Dr. Wang, the rehab doctor. According to Dr. Wang, he can start to do volunteer work. We are looking into volunteering at either DeGraff (because it's close), ECMC (because Steven said he needs to give back, but it's pretty far away) or Meals on Wheels. We haven't decided just yet what he should do.
The doctor also said he could take a driving course so that he can start driving again. Holy cow!! Still can't believe it! Last night he drove for the first time! We asked him to move my car out of the driveway and his Aunt Brenda went with him. The next thing I know he's going for a ride around the block! Aunt Brenda said he did great! Went nice and slow...which I didn't think was ever possible! Lol.
Today, we had an appt at ECMC for his left ear(side with the injury) because he keeps saying that it's plugged. The doctors have looked in his ear to see if there was any thing blocking it, but nothing. So we think he may have some hearing loss. However, it was an absolute mad house at the ENT clinic at ECMC today. I didn't know it was just a clinic. I thought it was an actual doctor that we were seeing. I bet we would have been there about 4 hours...so we left! Lol. I made him an appt with an ENT here in town.
So because we were at the hospital, I decided to take him on a tour of where he stayed with in there. First we went to visit the rehab floor. The nurses were thrilled to see him. He did remember that floor. He was very sweet when talking to all of the nurses. He told them thank you for saving him.
We also went to ICU. It was very serene. The nurses were just thrilled that we came through there. They said it gives them reason to continue doing what they do. Steven was in awe of what it was like in there. He was staring at the patients and noticed that one patient had a trach in his throat. He said he was so glad he never had to have one of those. The nurse also showed him an empty room...she said it was like a space ship...which is sooo true.
When we left he told me that it was very inspirational for him to see the ICU and how bad it was. It will keep him fighting to stay healthy!!!!
All in all, it's been a great couple of weeks. Very, very happy that he is home.
Again, thanks for all the prayers.
I know it's been 2 weeks since I posted. I was out of town. I do have some things to write about at least.
Last Wednesday Steven went to therapy. His physical and occupational therapists both said that he will probably only need therapy for 2-4 more weeks! They both said there is not much more that they can do for him. Amazing...simply amazing.
The speech therapy is going to go a little longer...this is the one we thought he didn't need because he speaks just fine to us. He does use some of his own words sometimes but for the most part we thought he was doing great. However, according to his speech therapist, he says Steven has a one track mind and that he needs to expand his horizons...so that's what they will be working on. And I thought speech therapy was just that...learning to speak! The things I have learned in the last month and a half.
Last Thursday, Patrick took him for a follow up appt at ECMC with Dr. Wang, the rehab doctor. According to Dr. Wang, he can start to do volunteer work. We are looking into volunteering at either DeGraff (because it's close), ECMC (because Steven said he needs to give back, but it's pretty far away) or Meals on Wheels. We haven't decided just yet what he should do.
The doctor also said he could take a driving course so that he can start driving again. Holy cow!! Still can't believe it! Last night he drove for the first time! We asked him to move my car out of the driveway and his Aunt Brenda went with him. The next thing I know he's going for a ride around the block! Aunt Brenda said he did great! Went nice and slow...which I didn't think was ever possible! Lol.
Today, we had an appt at ECMC for his left ear(side with the injury) because he keeps saying that it's plugged. The doctors have looked in his ear to see if there was any thing blocking it, but nothing. So we think he may have some hearing loss. However, it was an absolute mad house at the ENT clinic at ECMC today. I didn't know it was just a clinic. I thought it was an actual doctor that we were seeing. I bet we would have been there about 4 hours...so we left! Lol. I made him an appt with an ENT here in town.
So because we were at the hospital, I decided to take him on a tour of where he stayed with in there. First we went to visit the rehab floor. The nurses were thrilled to see him. He did remember that floor. He was very sweet when talking to all of the nurses. He told them thank you for saving him.
We also went to ICU. It was very serene. The nurses were just thrilled that we came through there. They said it gives them reason to continue doing what they do. Steven was in awe of what it was like in there. He was staring at the patients and noticed that one patient had a trach in his throat. He said he was so glad he never had to have one of those. The nurse also showed him an empty room...she said it was like a space ship...which is sooo true.
When we left he told me that it was very inspirational for him to see the ICU and how bad it was. It will keep him fighting to stay healthy!!!!
All in all, it's been a great couple of weeks. Very, very happy that he is home.
Again, thanks for all the prayers.
Tuesday, July 6, 2010
7/6/10 - Day 64
Hi All...I know I'm late...I'm sorry.
I have to say there has been little change since last week. Steven is doing great. He's starting to go out a little more each week. We went to the mall on Saturday to see Cindy while she was working. He insisted on buying her a flower before we went. Very sweet.
I have to say...most days he is very sweet. He does have some mood swings, which is normal...but most of the time he is a pleasure to be around. He laughs and makes jokes...it's is just soooo great. I can't even explain it.
He is still going to therapy every week. He wasn't very cooperative this week to get his homework done. I told him he had to finish it up today before he goes back to therapy tomorrow. He was diligent in getting it done. I was very surprised! Not once did he say "I can't" or "I'll never finish it"...He sat at the table and got it done. It took him about 3 different session to finish it...but he did all of them except for one. He said, I'll finish it in the morning before therapy. My guess is, he'll get it done.
We had the family over on the 4th of July for backyard fireworks...It was probably the best 4th of July ever. Patrick's father, Steven and the rest of the family, all in one place for a great night. Could not ask for anything more.
We are blessed...every one of us. I thank God everyday that Steven is a miracle.
Thanks for all the prayers...love you all <3
I have to say there has been little change since last week. Steven is doing great. He's starting to go out a little more each week. We went to the mall on Saturday to see Cindy while she was working. He insisted on buying her a flower before we went. Very sweet.
I have to say...most days he is very sweet. He does have some mood swings, which is normal...but most of the time he is a pleasure to be around. He laughs and makes jokes...it's is just soooo great. I can't even explain it.
He is still going to therapy every week. He wasn't very cooperative this week to get his homework done. I told him he had to finish it up today before he goes back to therapy tomorrow. He was diligent in getting it done. I was very surprised! Not once did he say "I can't" or "I'll never finish it"...He sat at the table and got it done. It took him about 3 different session to finish it...but he did all of them except for one. He said, I'll finish it in the morning before therapy. My guess is, he'll get it done.
We had the family over on the 4th of July for backyard fireworks...It was probably the best 4th of July ever. Patrick's father, Steven and the rest of the family, all in one place for a great night. Could not ask for anything more.
We are blessed...every one of us. I thank God everyday that Steven is a miracle.
Thanks for all the prayers...love you all <3
Monday, June 28, 2010
6/28/10 - Day 56
Steven had a great week. He had therapy on Wednesday and Thursday. He is doing very well. His speech therapist did not come in so he missed that.
He has been walking on a daily basis...if we can drag him out of the house. He still does not care to do much. We have gotten him to go to a few stores. He is actually out buying a CD with Cindy right now. I tried to get him to go to my nephew, Bryans graduation on Thursday and Catherine's graduation party on Sunday, but he wouldn't go to either. Too many people I think.
He had 2 doctors appointments...one last week and one this morning. I know I promised to post on Sunday nights, however, I wanted to wait until we saw the doctor this morning, so that's why I waited.
Dr. Wang (Rehab) said he is doing well. He changed some the dosage of one of his meds. He also got two steroid shots in the back of his neck to help with the headaches and earaches. It seemed to help the headaches, but not the ear. He still says his ear is plugged.
Steven saw Dr. Bennett (Neurosurgeon-my hero)today. He didn't do much really. Didn't even look at the incision...which I thought was strange...but he said he is doing great. He strongly encouraged him to lead a healthy lifestyle. No drinking, smoking, drugs, etc. He has to stay as healthy as he can! He did give in to 1 cup of caffeinated coffee a day...I think Steven feels like he won a battle...lol.
Dr. Bennett also encourage Steven to enroll in college!!! OMG could I have imagined 56 days ago that we would be talking about college??? No way. He said to enroll in one class for the first semester and to try to do the best he can. If he does well, to then take 2 classes for the following semester...and so on.
Well...that's all I can remember for now. If I think of anything else, I will post it later.
It's been a great week!
Thanks for the prayers!!! Love ya <3
PS...the new picture is from Father's Day! Doesn't he look awesome...lol
He has been walking on a daily basis...if we can drag him out of the house. He still does not care to do much. We have gotten him to go to a few stores. He is actually out buying a CD with Cindy right now. I tried to get him to go to my nephew, Bryans graduation on Thursday and Catherine's graduation party on Sunday, but he wouldn't go to either. Too many people I think.
He had 2 doctors appointments...one last week and one this morning. I know I promised to post on Sunday nights, however, I wanted to wait until we saw the doctor this morning, so that's why I waited.
Dr. Wang (Rehab) said he is doing well. He changed some the dosage of one of his meds. He also got two steroid shots in the back of his neck to help with the headaches and earaches. It seemed to help the headaches, but not the ear. He still says his ear is plugged.
Steven saw Dr. Bennett (Neurosurgeon-my hero)today. He didn't do much really. Didn't even look at the incision...which I thought was strange...but he said he is doing great. He strongly encouraged him to lead a healthy lifestyle. No drinking, smoking, drugs, etc. He has to stay as healthy as he can! He did give in to 1 cup of caffeinated coffee a day...I think Steven feels like he won a battle...lol.
Dr. Bennett also encourage Steven to enroll in college!!! OMG could I have imagined 56 days ago that we would be talking about college??? No way. He said to enroll in one class for the first semester and to try to do the best he can. If he does well, to then take 2 classes for the following semester...and so on.
Well...that's all I can remember for now. If I think of anything else, I will post it later.
It's been a great week!
Thanks for the prayers!!! Love ya <3
PS...the new picture is from Father's Day! Doesn't he look awesome...lol
Sunday, June 20, 2010
6/20/10 - Day 48
After some reconsideration and prodding from friends and family...lol, I have decided to continue with the blog on a weekly basis. I am grateful for the requests to keep it going. I just felt like there wasn't much going on daily but I am sure I will have information to share through out the week.
So...I will post on Sunday nights our weekly events.
I just want to say that today was THE BEST Father's Day ever. I could not have asked for more. I am very proud of my husband and son...love you both more than you will ever know.
I am very grateful for today.
Thanks for all the prayers...love you all <3
So...I will post on Sunday nights our weekly events.
I just want to say that today was THE BEST Father's Day ever. I could not have asked for more. I am very proud of my husband and son...love you both more than you will ever know.
I am very grateful for today.
Thanks for all the prayers...love you all <3
Saturday, June 19, 2010
6/19/10 - Day 47
Steven had a good day...he is not very interested in many visitors...not sure what the issue is just yet. I think he just wants to sleep all the time and doesn't want it to be interrupted...lol. So if you want to visit, just let me or Pat know and we will make sure he's up. Maybe he just needs to be surprised once in a while.
Steven is definitely on the right path...I believe with every ounce of my being that he will be just fine. We have had so many people say...if you didn't believe in miracles before...we definitely witnessed one with Steven. I do believe God has big plans for him. Not sure what exactly they will be, but it's gonna be good...I can feel it.
This is going to be my last post...
I just want to say I cannot thank all of you enough for everything you have done for Steven and our family. The meals, the support, the cards, reading the blog, etc...I could just go on and on...but most of all for all of the prayers...I truly believe that this is what allowed Steven to be with us here today. I also thank God for not taking him away from us...
With my tears...thank you for all the support and prayers...love you all <3
Steven is definitely on the right path...I believe with every ounce of my being that he will be just fine. We have had so many people say...if you didn't believe in miracles before...we definitely witnessed one with Steven. I do believe God has big plans for him. Not sure what exactly they will be, but it's gonna be good...I can feel it.
This is going to be my last post...
I just want to say I cannot thank all of you enough for everything you have done for Steven and our family. The meals, the support, the cards, reading the blog, etc...I could just go on and on...but most of all for all of the prayers...I truly believe that this is what allowed Steven to be with us here today. I also thank God for not taking him away from us...
With my tears...thank you for all the support and prayers...love you all <3
Friday, June 18, 2010
6/18/10 - Day 46
Steven had a pretty busy day today...well at least according to him...haha.
He has been complaining that his throat hurt and the "good" ear has been hurting him. So I finally gave in and called his primary Dr...yes the one I refused to take him too. I just wanted his ears and throat checked. He said they were fine, maybe his throat was scratched when the tube was removed. He referred us to a Ear, Nose and Throat doctor. He did reconfirm my reasoning for not taking him there anymore...the guy is a quack.
We met with our service coordinator for the services Steven will need...the problem is, it will take forever before they get going. Stupid red tape.
He went for a couple of rides in the car today...the car rides seem to be getting better. He's not as anxious anymore. He even went to Blockbuster with Cindy and he went in the store :) His first outing other than Aunt Mo's or the doctor. He's getting there!!
We didn't get to go for our walk...the meeting with the service coordinator took a couple of hours and when we were done, there was no way he was walking. I'll get him tomorrow :)
Another good day :)
Thanks for all the prayers...love you all <3
He has been complaining that his throat hurt and the "good" ear has been hurting him. So I finally gave in and called his primary Dr...yes the one I refused to take him too. I just wanted his ears and throat checked. He said they were fine, maybe his throat was scratched when the tube was removed. He referred us to a Ear, Nose and Throat doctor. He did reconfirm my reasoning for not taking him there anymore...the guy is a quack.
We met with our service coordinator for the services Steven will need...the problem is, it will take forever before they get going. Stupid red tape.
He went for a couple of rides in the car today...the car rides seem to be getting better. He's not as anxious anymore. He even went to Blockbuster with Cindy and he went in the store :) His first outing other than Aunt Mo's or the doctor. He's getting there!!
We didn't get to go for our walk...the meeting with the service coordinator took a couple of hours and when we were done, there was no way he was walking. I'll get him tomorrow :)
Another good day :)
Thanks for all the prayers...love you all <3
Thursday, June 17, 2010
6/17/10 - Day 45
Very quiet day for Steven today. He still seems depressed. Doesn't have much to say. He seems to have an earache...the right ear. I bought him some natural ear drops and he said they helped. He is also complaining of a sore throat. Hope he is not getting a cold. Maybe he is just not feeling good and this is why he is kinda withdrawn. I'm calling the doctor in the am.
He spent the day with Katie. She made him take a walk. He only went 6 houses but at least he went. She also made him walk the line in the street for balance, which I thought was a great idea. She gets her smarts from me...don't let Patrick tell you any different...haha. She also had him do some of the exercises that therapy gave to him to do at home. She's a tough cookie.
Aunt Brenda brought us dinner tonight...she's awesome. She also made him go for a walk (I should say she convinced him to go)...anyways he walked another 4 houses so that was a total of 10 today :)
All in all, another good day.
Thanks for all the prayers...love you all <3
He spent the day with Katie. She made him take a walk. He only went 6 houses but at least he went. She also made him walk the line in the street for balance, which I thought was a great idea. She gets her smarts from me...don't let Patrick tell you any different...haha. She also had him do some of the exercises that therapy gave to him to do at home. She's a tough cookie.
Aunt Brenda brought us dinner tonight...she's awesome. She also made him go for a walk (I should say she convinced him to go)...anyways he walked another 4 houses so that was a total of 10 today :)
All in all, another good day.
Thanks for all the prayers...love you all <3
Wednesday, June 16, 2010
6/16/10 - Day 44
Busy day for Steven today. He had physical, occupational and speech therapy today. I was not able to go with him because I had to go out of town again. Patrick and sister Barb went though. I was told that he did very well in all of the therapies. He will be seen once a week for an hour for each session.
His biggest issue seems to be balance. If he closes his eyes, he loses his balance and almost falls over. They did give us different things that we can do at home with him. We will start on that as soon as I get home tomorrow...lol. He will be so happy...haha.
Unfortunately, I don't have much to say today...Aunt Barb, if you have any info to add, by all means add it. Thanks for taking the time to be with him today. We all love you very much :)
Thanks for all the prayers...love you all :)
His biggest issue seems to be balance. If he closes his eyes, he loses his balance and almost falls over. They did give us different things that we can do at home with him. We will start on that as soon as I get home tomorrow...lol. He will be so happy...haha.
Unfortunately, I don't have much to say today...Aunt Barb, if you have any info to add, by all means add it. Thanks for taking the time to be with him today. We all love you very much :)
Thanks for all the prayers...love you all :)
Tuesday, June 15, 2010
6/15/10 - Day 43
Busy, busy day...We did sleep in a little bit. Steven didn't get up until 8:30 today. But as soon as we got up, it got crazy.
I had to deal with numerous phone calls, emails, etc. You would have thought I was at work today.
Our dog has been limping, and I had to take him to the vet, so I had to find someone to stay with him...thanks Katie...you're the best.
We went for our walk and today he walked 9 houses...which actually was our entire side of our street! He did a great job...wasn't happy about it but he did it!
I did get him to play the mind games on my iPod...there is a game that displays a 6 digit number for less that 1 second...you then have to enter what the number was. He got 10 out of 10 right. And he played the game about 5 times today. Once I think he only got 8 out of 10 right! It was awesome...Thanks Linda for telling me about he app.
He also went for his first visit today. We went to Aunt Mo's house. We stayed about 1/2 hour. He seemed ok, but I know he was anxious. Everytime I looked at him, he was staring at me :)
His appetite seems better...he ate all of his dinner which I think is a first.
Another great day today...tomorrow therapy starts...woohoo!
Thanks for all the prayers...love you all <3
I had to deal with numerous phone calls, emails, etc. You would have thought I was at work today.
Our dog has been limping, and I had to take him to the vet, so I had to find someone to stay with him...thanks Katie...you're the best.
We went for our walk and today he walked 9 houses...which actually was our entire side of our street! He did a great job...wasn't happy about it but he did it!
I did get him to play the mind games on my iPod...there is a game that displays a 6 digit number for less that 1 second...you then have to enter what the number was. He got 10 out of 10 right. And he played the game about 5 times today. Once I think he only got 8 out of 10 right! It was awesome...Thanks Linda for telling me about he app.
He also went for his first visit today. We went to Aunt Mo's house. We stayed about 1/2 hour. He seemed ok, but I know he was anxious. Everytime I looked at him, he was staring at me :)
His appetite seems better...he ate all of his dinner which I think is a first.
Another great day today...tomorrow therapy starts...woohoo!
Thanks for all the prayers...love you all <3
Monday, June 14, 2010
6/14/10 - Day 42
Another pretty quiet day. We had an interview for another service provider today. She was very nice.
I'm not sure if I talked about this before but basically a service provider will coordinate any services Steven may need. These services are for home care, they can stay with him when we go back to work. They also provide Independent Living Skills Training which can help him learn to cook again, balance his checkbook, go shopping, etc. I have had to interview a few different companies, and now need to decide who I want to work with.
He had a pretty good day. Went for our walk and went 7 houses...even though he's telling everyone we went 8...lol. I also had him help fold his laundry. He did a great job. He put away his laundry and help me make his bed. He wasn't trilled about it but he did it.
I also had him try a game on my iPod that Aunt Linda told me about...it's called Brain Toot. It is perfect for him but...he wasn't interested. He told me he would do it tomorrow...he was too tired. It was close to bedtime, so hopefully, he will be more willing in the morning.
He had lots of visitors again today...thanks everyone.
All in all, another good day. Can't wait for therapy to begin.
Thanks for all the prayers...love you all <3
I'm not sure if I talked about this before but basically a service provider will coordinate any services Steven may need. These services are for home care, they can stay with him when we go back to work. They also provide Independent Living Skills Training which can help him learn to cook again, balance his checkbook, go shopping, etc. I have had to interview a few different companies, and now need to decide who I want to work with.
He had a pretty good day. Went for our walk and went 7 houses...even though he's telling everyone we went 8...lol. I also had him help fold his laundry. He did a great job. He put away his laundry and help me make his bed. He wasn't trilled about it but he did it.
I also had him try a game on my iPod that Aunt Linda told me about...it's called Brain Toot. It is perfect for him but...he wasn't interested. He told me he would do it tomorrow...he was too tired. It was close to bedtime, so hopefully, he will be more willing in the morning.
He had lots of visitors again today...thanks everyone.
All in all, another good day. Can't wait for therapy to begin.
Thanks for all the prayers...love you all <3
Sunday, June 13, 2010
6/13/10 - Day 41
Another uneventful day. Hopefully once therapy starts things will start moving again.
He didn't have much of an appetite again today, his stomach is still not feeling right to him.
I said yesterday that I think he is depressed. After talking to a few people, I think what I/we need to remember is his brain is just starting to wake up. He doesn't remember the last 40 days. We all see how far he has come, but to Steven, he remembers being happy and healthy one day, and now he feels like crap. He only has bits and pieces of the last 40 days.
According to the Rancho Los Amigos website http://www.waiting.com/rancholosamigos.html I would say he is between a stage 6 and 7. It states that he is more aware of physical problems than thinking problems. Which I notice. He focuses mostly on his scars on his body and head.
I did get him to take one walk today. We went 6 houses which was the goal so we did get something accomplished. I didn't push him too much over the weekend because he did have quite a bit of company. Now tomorrow is another story. Back to work for him!
We're getting there.
Thanks for all the prayers...love you all <3
He didn't have much of an appetite again today, his stomach is still not feeling right to him.
I said yesterday that I think he is depressed. After talking to a few people, I think what I/we need to remember is his brain is just starting to wake up. He doesn't remember the last 40 days. We all see how far he has come, but to Steven, he remembers being happy and healthy one day, and now he feels like crap. He only has bits and pieces of the last 40 days.
According to the Rancho Los Amigos website http://www.waiting.com/rancholosamigos.html I would say he is between a stage 6 and 7. It states that he is more aware of physical problems than thinking problems. Which I notice. He focuses mostly on his scars on his body and head.
I did get him to take one walk today. We went 6 houses which was the goal so we did get something accomplished. I didn't push him too much over the weekend because he did have quite a bit of company. Now tomorrow is another story. Back to work for him!
We're getting there.
Thanks for all the prayers...love you all <3
Saturday, June 12, 2010
6/12/10 - Day 40
Pretty uneventful day. I'm worried that he is a little depressed. Really doesn't want to do anything except sleep and sit on the couch. We did go for one walk today, we went 5 houses like we planned...however, this afternoon, he did not want to go for a second walk. Totally refused.
I know his head hurts all the time but the doctors are adamant to not give him any additional pain medication...so we have been putting ice packs on his head and letting him sleep.
No appetite, no energy, I know this will pass and this is nothing compared to what he has been through so far...just another hurdle.
Even though he does not have an appetite, whenever I give him food he usually eats so that is going to be my game plan...I guess instead of asking him what he wants to do, I just plan on telling him what we are going to do.
Bedtime tonight was 8:15...I couldn't get him to stay up any longer. He did only have one nap and he stayed in bed until 8 this morning. He said he was up at 6 and just stayed in bed. Not sure how true this is but...
He did have a pretty busy day...quite a few visitors...maybe that wore him out?
We'll get through...we always do :)
Thanks for all the prayer...love you all <3
I know his head hurts all the time but the doctors are adamant to not give him any additional pain medication...so we have been putting ice packs on his head and letting him sleep.
No appetite, no energy, I know this will pass and this is nothing compared to what he has been through so far...just another hurdle.
Even though he does not have an appetite, whenever I give him food he usually eats so that is going to be my game plan...I guess instead of asking him what he wants to do, I just plan on telling him what we are going to do.
Bedtime tonight was 8:15...I couldn't get him to stay up any longer. He did only have one nap and he stayed in bed until 8 this morning. He said he was up at 6 and just stayed in bed. Not sure how true this is but...
He did have a pretty busy day...quite a few visitors...maybe that wore him out?
We'll get through...we always do :)
Thanks for all the prayer...love you all <3
Friday, June 11, 2010
6/11/10 - Day 39
Well today was an even earlier day. Steven was up on and off from 4 am. He has been having some belly issues. I also think because he is napping during the day, he isn't sleeping well at night. He complained about the traffic outside his window, that it was too loud. I think I will put the air on tonight, maybe that will help.
He made his own breakfast today...a bowl of cereal. He did it perfectly. Said the milk container was too heavy, but he didn't spill it :)
We went for two walks again today, this time we walked down to the fourth house. I asked him if he wanted to keep going, but he said no. I think because I told him four houses today, that's all he was willing to do...lol
His appetite seems better today thank goodness. He has lost about 25 pounds since the accident. I need to fatten this boy up. Problem is he has never had much of an appetite so this is going to be a struggle.
Still very tired. It's 9:06 right now and he hasn't asked to go to bed yet. Usually at exactly 9 he wants to go. I'm hoping he stays up a little later and then sleeps past 4 am!
Again, another good day in my opinion. Baby steps but we are going in the right direction.
Thanks for all the prayers...love you all <3
He made his own breakfast today...a bowl of cereal. He did it perfectly. Said the milk container was too heavy, but he didn't spill it :)
We went for two walks again today, this time we walked down to the fourth house. I asked him if he wanted to keep going, but he said no. I think because I told him four houses today, that's all he was willing to do...lol
His appetite seems better today thank goodness. He has lost about 25 pounds since the accident. I need to fatten this boy up. Problem is he has never had much of an appetite so this is going to be a struggle.
Still very tired. It's 9:06 right now and he hasn't asked to go to bed yet. Usually at exactly 9 he wants to go. I'm hoping he stays up a little later and then sleeps past 4 am!
Again, another good day in my opinion. Baby steps but we are going in the right direction.
Thanks for all the prayers...love you all <3
Thursday, June 10, 2010
6/10/10 - Day 38
Today was a long day. Steven and I both had lots to do.
Our day started at 7:00...he was wide awake...problem was I wasn't...lol. That is going to take some getting used to. He had breakfast and a shower all by 8:30.
We decided to go for a walk. We walked down our street to the third house. Hoping tomorrow to get to the fourth house. After we got back, he was exhausted, so he took a morning nap.
I had a few appointments that I had to make for him, so I was on the phone quite a bit today. We also had some people come into our home today for appointments. He told me this made him nervous. I think he heard some things today about the accident and his treatment that he hasn't heard before and that's why he was nervous. Patrick and I talked to him about it and we are just trying to reassure him that it's all to help him get better as quickly as he can.
We went for another walk in the afternoon. He only wanted to go three houses again, so that's what we did. He again was tired, so he took an afternoon nap also.
He got quite a bit of company today. It's nice because it helps to keep his mind busy. He seemed a little bored today. There is only so much he can do and then he gets tired, but once he's tired, he bored...
All in all, I think we had a great day! I loved every minute of being home with him.
Thanks for all the prayers...love you all <3
Our day started at 7:00...he was wide awake...problem was I wasn't...lol. That is going to take some getting used to. He had breakfast and a shower all by 8:30.
We decided to go for a walk. We walked down our street to the third house. Hoping tomorrow to get to the fourth house. After we got back, he was exhausted, so he took a morning nap.
I had a few appointments that I had to make for him, so I was on the phone quite a bit today. We also had some people come into our home today for appointments. He told me this made him nervous. I think he heard some things today about the accident and his treatment that he hasn't heard before and that's why he was nervous. Patrick and I talked to him about it and we are just trying to reassure him that it's all to help him get better as quickly as he can.
We went for another walk in the afternoon. He only wanted to go three houses again, so that's what we did. He again was tired, so he took an afternoon nap also.
He got quite a bit of company today. It's nice because it helps to keep his mind busy. He seemed a little bored today. There is only so much he can do and then he gets tired, but once he's tired, he bored...
All in all, I think we had a great day! I loved every minute of being home with him.
Thanks for all the prayers...love you all <3
Wednesday, June 9, 2010
6/9/10 - Day 37
Not much to report today. Steven wasn't feelings so great. Had a stomach ache. Katie took his temperature, but he didn't have one.
I finally got home from my trip to NY and he is sound asleep. He told Katie, tell Mom not to wake me...yeah right! I went directly up those stairs to his room and gave him a big fat kiss :)
Tomorrow we will have Steven and Mom day...It feels like I have been waiting a lifetime for it. It's gonna be greatttttttttt.
Will have a better report tomorrow I'm sure.
Thanks for all the prayers...love you all <3
I finally got home from my trip to NY and he is sound asleep. He told Katie, tell Mom not to wake me...yeah right! I went directly up those stairs to his room and gave him a big fat kiss :)
Tomorrow we will have Steven and Mom day...It feels like I have been waiting a lifetime for it. It's gonna be greatttttttttt.
Will have a better report tomorrow I'm sure.
Thanks for all the prayers...love you all <3
Tuesday, June 8, 2010
6/8/10 - Day 36
Not much to report today. He slept well last night according to him and Patrick. I think he was very happy to be sleeping in his own bed. Patrick said he slept all night and he didn't have any issues with him getting up in the middle of the night. We were worried he would get up and want to go downstairs.
I feel bad that I am not with him...he called me 7 times and sent me a text all before 10:00 am today. I have to tell him every time I talk to him that I am away. He keeps forgetting. We'll make it through...24 more hours and I will be home.
Katie is staying at the house with him until I get home to help out. She is a great sister. Aunt Barb came over and had a math session for an hour with him while Patrick went to work for a little while. Thanks Barbie!
I guess he went outside for a little bit. The sun was hurting his eyes...not sure if it's because he has been indoors for the last 36 days or if it's due to the injury. I guess we will have to get him some fashionable sunglasses...lol.
He did seem a little less confused today. He remembered what he ate for lunch and dinner. He also remembered who came to visit him. Little by little he is getting there.
I'm in the process of trying to find him a new physician. If anyone know of a good family physician that would be willing to deal with all of these medical issues, please let me know.
His rehab therapy is not going to start until next week. I was really hoping to get him in much sooner. I want him to be doing something as soon as possible. I guess I will have to figure out some therapy for him myself...haha.
All in all, I say it was a good day.
Thanks for all of the prayers...love you all <3
I feel bad that I am not with him...he called me 7 times and sent me a text all before 10:00 am today. I have to tell him every time I talk to him that I am away. He keeps forgetting. We'll make it through...24 more hours and I will be home.
Katie is staying at the house with him until I get home to help out. She is a great sister. Aunt Barb came over and had a math session for an hour with him while Patrick went to work for a little while. Thanks Barbie!
I guess he went outside for a little bit. The sun was hurting his eyes...not sure if it's because he has been indoors for the last 36 days or if it's due to the injury. I guess we will have to get him some fashionable sunglasses...lol.
He did seem a little less confused today. He remembered what he ate for lunch and dinner. He also remembered who came to visit him. Little by little he is getting there.
I'm in the process of trying to find him a new physician. If anyone know of a good family physician that would be willing to deal with all of these medical issues, please let me know.
His rehab therapy is not going to start until next week. I was really hoping to get him in much sooner. I want him to be doing something as soon as possible. I guess I will have to figure out some therapy for him myself...haha.
All in all, I say it was a good day.
Thanks for all of the prayers...love you all <3
Monday, June 7, 2010
6/7/10- Day 35
He's home!!! He's home!!! Can't believe it. Can't believe I'm not home with him...but again, he's in great hands.
He got home about 10:00 this morning. I spoke with him not long after he that...He seemed different. Very quiet.
He did recognize a few things on the drive home...which is great. However, Patrick said he seemed nervous when they got home.
I guess he took a nice nap this afternoon.
I talked to him again this afternoon and he said he was scared. I'm sure it's the change of scenery. He also asked if I was at work and when I will be home. I feel sad that I am not home with him...but gotta keep my house so gotta work :) I will be home in 48 hours and I will feel much better.
Cindy and Katie are making him his favorite dinner tonight. I hope he enjoys it.
Thank you everyone for everything! The prayers, food, support, etc. We will never be able to thank you enough.
Thank you for the prayers...love you all <3
He got home about 10:00 this morning. I spoke with him not long after he that...He seemed different. Very quiet.
He did recognize a few things on the drive home...which is great. However, Patrick said he seemed nervous when they got home.
I guess he took a nice nap this afternoon.
I talked to him again this afternoon and he said he was scared. I'm sure it's the change of scenery. He also asked if I was at work and when I will be home. I feel sad that I am not home with him...but gotta keep my house so gotta work :) I will be home in 48 hours and I will feel much better.
Cindy and Katie are making him his favorite dinner tonight. I hope he enjoys it.
Thank you everyone for everything! The prayers, food, support, etc. We will never be able to thank you enough.
Thank you for the prayers...love you all <3
Sunday, June 6, 2010
6/6/10 - Day 34
Busy, busy day...just trying to get everything ready for Steven to come home tomorrow!!
His room is ready...hopefully we have everything that he needs. I went shopping to get all of his favorite foods including steak for dinner tomorrow night (his favorite meal)...all of his laundry is done so he can take his first shower at home and have nice clean clothes...Get rid of all of those damn hospital germs...haha
According to his Dr., he will be released by 11:00 am so barring no issues, he should be able to eat lunch in his own kitchen tomorrow afternoon.
Wish I was going to be home with him. He's being left in great hands though...I have no worries.
He said the first thing he wants to do is take a nap in his own bed...I will give him a few days of rest then were going to work on getting better :)
Thanks for all they prayers...love you all <3
His room is ready...hopefully we have everything that he needs. I went shopping to get all of his favorite foods including steak for dinner tomorrow night (his favorite meal)...all of his laundry is done so he can take his first shower at home and have nice clean clothes...Get rid of all of those damn hospital germs...haha
According to his Dr., he will be released by 11:00 am so barring no issues, he should be able to eat lunch in his own kitchen tomorrow afternoon.
Wish I was going to be home with him. He's being left in great hands though...I have no worries.
He said the first thing he wants to do is take a nap in his own bed...I will give him a few days of rest then were going to work on getting better :)
Thanks for all they prayers...love you all <3
Saturday, June 5, 2010
6/5/10 - Day 33
He's almost home...can't wait. Talked to the Dr. today and it looks like Monday will be the day. I have to go out of town for work so Patrick will have to do it alone. Probably going to be harder on me then on them.
Today was a great day. For the most part he was talking appropriately...not a ton of jibberish. He remembered quite a bit from the events of the day...Who visited, what he had for lunch, different things he said throughout the day. Definitely improving! I wonder if it's because the meds are being reduced?
Cindy's nephews Michael and Christoper came to visit him today. It was nice for Steven, but I think the kids were a little scared of him. I hope they will feel better with him as he gets better.
He had quite a few visitors today...he seemed pretty tired at the end of the day and I was hoping he would fall asleep by the time I left, but he didn't. He was still wide awake. It broke my heart. He looked sad that he was going to be alone...or maybe it's just a mother's guilt. Cannot wait to get him home.
We're in the homestretch!!
Thank you for all the prayers...love you all <3
Today was a great day. For the most part he was talking appropriately...not a ton of jibberish. He remembered quite a bit from the events of the day...Who visited, what he had for lunch, different things he said throughout the day. Definitely improving! I wonder if it's because the meds are being reduced?
Cindy's nephews Michael and Christoper came to visit him today. It was nice for Steven, but I think the kids were a little scared of him. I hope they will feel better with him as he gets better.
He had quite a few visitors today...he seemed pretty tired at the end of the day and I was hoping he would fall asleep by the time I left, but he didn't. He was still wide awake. It broke my heart. He looked sad that he was going to be alone...or maybe it's just a mother's guilt. Cannot wait to get him home.
We're in the homestretch!!
Thank you for all the prayers...love you all <3
Friday, June 4, 2010
6/4/10 - Day 32
Things are moving even quicker...looks like Steven will be coming home Monday or Tuesday! As Bessy says...I think he's going to give us a run for our money.
He was in a very good mood today even with his meds being lowered. Quite the entertainer again. He seemed a little bit more confused today than yesterday. Not terribly worse. Maybe it has to do with the reduction in the meds.
We did get a queen size bed for him, so one issue taken care of. I spoke with the social worker at ECMC and it she will set up the outpatient therapy for us. We plan on going to DeGraff rehab. ECMC said of course they would want us to go there because they are the best, however, they did say they think Degraff would be the best 2nd choice. It is so much closer to our home it just makes sense.
I was finally able to take him off the floor today. I took him downstairs to get a Timmy Ho's coffee. We then went outside to sit in the sunshine for a little while. We stayed out about 5 minutes and then he wanted to go back inside...said he was cold.
One last story I forgot to tell yesterday...which I can't believe I forgot! Steven was trying to get out of bed to go to the bathroom, and I was helping him. When he stood up, he looked at me and said...you wanna dance Mama?? OMG!! Yes!! I got my dance with him in his hospital room! It was priceless :)
We are so blessed to have him :)
Thank you for the prayers...love you all <3
He was in a very good mood today even with his meds being lowered. Quite the entertainer again. He seemed a little bit more confused today than yesterday. Not terribly worse. Maybe it has to do with the reduction in the meds.
We did get a queen size bed for him, so one issue taken care of. I spoke with the social worker at ECMC and it she will set up the outpatient therapy for us. We plan on going to DeGraff rehab. ECMC said of course they would want us to go there because they are the best, however, they did say they think Degraff would be the best 2nd choice. It is so much closer to our home it just makes sense.
I was finally able to take him off the floor today. I took him downstairs to get a Timmy Ho's coffee. We then went outside to sit in the sunshine for a little while. We stayed out about 5 minutes and then he wanted to go back inside...said he was cold.
One last story I forgot to tell yesterday...which I can't believe I forgot! Steven was trying to get out of bed to go to the bathroom, and I was helping him. When he stood up, he looked at me and said...you wanna dance Mama?? OMG!! Yes!! I got my dance with him in his hospital room! It was priceless :)
We are so blessed to have him :)
Thank you for the prayers...love you all <3
Thursday, June 3, 2010
6/3/10 - Day 31
I think his new nickname is miracle boy :) He has come so far in the last 2 days, it's amazing.
I had to go out of town yesterday for work...so I wasn't able to visit with him yesterday and didn't get there until 4:00 today. It was really strange not to be there but I had great replacements :) So most of this post is based on information I received from others.
Debbie was walking him down the hall and he saw a group of women standing by the nurses station and Steven said to one of them "Hi Bridget"...so Deb looks and that was the woman's name. Bridget tells Deb that she used to work with Steven! He remembered a face and a name from a very long time ago! Awesome! Not sure I can even do that...haha.
The doctor came in to see Steven today...he was checking out all of Steven's tattoos...I guess he got a real kick out of them. He was making Steven walk around. Cindy said the Dr. let's him walk alone and just follows behind him.
They are reducing the narcotic meds that he takes...he should be off all of them by Sunday. They want him off them before he is released. It looks like he will be coming home Wed or Thur. I would like him to be off the meds for a couple days before he comes home. I'm sure his happy demeanor is going to change rapidly and I would like him to be in the hospital when that happens.
He no longer needs thickening for his drinks and was changed to a regular diet! Wow...tons of stuff in two days.
We have a lot of things to figure out before he comes home. We have to find him a bed...find alarms for the doors, windows and bed. Figure out where he is going to go for outpatient rehab. He will need 24 hour supervision, so we need to figure out who can stay with him. I'm hoping to take a week or two off once he gets home so we will be ok for a while. We are also looking into a type of home care for him. It doesn't matter...we will figure it all out...I'm just happy he is coming home and I am grateful that God allowed us to keep him.
Thank you for all the prayers...love you all <3
I had to go out of town yesterday for work...so I wasn't able to visit with him yesterday and didn't get there until 4:00 today. It was really strange not to be there but I had great replacements :) So most of this post is based on information I received from others.
Debbie was walking him down the hall and he saw a group of women standing by the nurses station and Steven said to one of them "Hi Bridget"...so Deb looks and that was the woman's name. Bridget tells Deb that she used to work with Steven! He remembered a face and a name from a very long time ago! Awesome! Not sure I can even do that...haha.
The doctor came in to see Steven today...he was checking out all of Steven's tattoos...I guess he got a real kick out of them. He was making Steven walk around. Cindy said the Dr. let's him walk alone and just follows behind him.
They are reducing the narcotic meds that he takes...he should be off all of them by Sunday. They want him off them before he is released. It looks like he will be coming home Wed or Thur. I would like him to be off the meds for a couple days before he comes home. I'm sure his happy demeanor is going to change rapidly and I would like him to be in the hospital when that happens.
He no longer needs thickening for his drinks and was changed to a regular diet! Wow...tons of stuff in two days.
We have a lot of things to figure out before he comes home. We have to find him a bed...find alarms for the doors, windows and bed. Figure out where he is going to go for outpatient rehab. He will need 24 hour supervision, so we need to figure out who can stay with him. I'm hoping to take a week or two off once he gets home so we will be ok for a while. We are also looking into a type of home care for him. It doesn't matter...we will figure it all out...I'm just happy he is coming home and I am grateful that God allowed us to keep him.
Thank you for all the prayers...love you all <3
Wednesday, June 2, 2010
6/2/10 - Day 30
Can't believe its been a month already...but on the other hand...its only been a month? Feels like a lifetime.
Steven was moved to a new room today. Because he was taken out of the canopy bed, he no longer is restrained at night. Because of that, he can get out of bed so they moved his room closer to the nurses station so they can keep a better eye on him and hear when his bed alarm goes off if he gets up.
His speech therapist said he had 100% improvement since last week!! Woohoo!!
We have seen a great improvement in the last 2 days. He is starting to remember things that happen throughout the day. Not a lot but a few.
His mood is still really good...very happy to see people when they come to see him.
He's getting there! Can't wait to bring him home.
Thanks for all they prayers. Love you all <3
Steven was moved to a new room today. Because he was taken out of the canopy bed, he no longer is restrained at night. Because of that, he can get out of bed so they moved his room closer to the nurses station so they can keep a better eye on him and hear when his bed alarm goes off if he gets up.
His speech therapist said he had 100% improvement since last week!! Woohoo!!
We have seen a great improvement in the last 2 days. He is starting to remember things that happen throughout the day. Not a lot but a few.
His mood is still really good...very happy to see people when they come to see him.
He's getting there! Can't wait to bring him home.
Thanks for all they prayers. Love you all <3
Tuesday, June 1, 2010
6/1/10 - Day 29
Lots of surprises when I got there today! He is no longer in the canopy bed...which is great because he can lay down when he gets tired and we don't have to get an order from the doctor.
There was a meeting of the minds this morning and they are anticipating he may be sent home next Thursday or Friday. We will have a few things we have to figure out before then, but I'm told, that the social worker will help us out with all of that.
He remembered his therapist, Aimee's name today. That was the first time. He still doesn't remember why he's in the hospital. But I'm sure he will soon. They increased his therapy to 3 hours per day...so he was really tired this afternoon. Took a little nap :)
All in all, I think it was a good day...
Thanks for all the prayers...love you all <3
There was a meeting of the minds this morning and they are anticipating he may be sent home next Thursday or Friday. We will have a few things we have to figure out before then, but I'm told, that the social worker will help us out with all of that.
He remembered his therapist, Aimee's name today. That was the first time. He still doesn't remember why he's in the hospital. But I'm sure he will soon. They increased his therapy to 3 hours per day...so he was really tired this afternoon. Took a little nap :)
All in all, I think it was a good day...
Thanks for all the prayers...love you all <3
Monday, May 31, 2010
5/31/10 - Day 28
Day 28...can't believe it's been a month already...The entire month of May is just a blur to us that's for sure.
Steven had a pretty good day today. For the most part was in a very good mood. He, however is still is talking a lot of jibberish...I really hope some of this starts to make sense soon.
I noticed today quite a few of his words were strange...it was like he was putting two words together to make one. I had a hard time figuring out what he was saying.
He had quite a few visitors...and for the most part he was very cooperative. He called his grandma on the phone...that made her very happy. He does remember some phone numbers. We gave him his old cell phone...it doesn't have any service, but I have found that he types in some numbers, writes text messages, etc.
His handwriting and signature is improving. Aunt Brenda asked him to write her name and he did. Then he wrote the name Lisa...I think he was trying to Linda because Aunt Linda was there too. Just a little confused...but he's trying.
His Aunt Tammi brought him a Nintendo DS but he wasn't very interested. Nothing seems to interest him for more that 10 seconds other than talking. We've tried magazines, cards, games, and nothing seems to work.
All in all though, I think it was a great day. I'm hoping once therapy starts up tomorrow, he will start improving again.
Thanks for all the prayers...love you all <3
Steven had a pretty good day today. For the most part was in a very good mood. He, however is still is talking a lot of jibberish...I really hope some of this starts to make sense soon.
I noticed today quite a few of his words were strange...it was like he was putting two words together to make one. I had a hard time figuring out what he was saying.
He had quite a few visitors...and for the most part he was very cooperative. He called his grandma on the phone...that made her very happy. He does remember some phone numbers. We gave him his old cell phone...it doesn't have any service, but I have found that he types in some numbers, writes text messages, etc.
His handwriting and signature is improving. Aunt Brenda asked him to write her name and he did. Then he wrote the name Lisa...I think he was trying to Linda because Aunt Linda was there too. Just a little confused...but he's trying.
His Aunt Tammi brought him a Nintendo DS but he wasn't very interested. Nothing seems to interest him for more that 10 seconds other than talking. We've tried magazines, cards, games, and nothing seems to work.
All in all though, I think it was a great day. I'm hoping once therapy starts up tomorrow, he will start improving again.
Thanks for all the prayers...love you all <3
Sunday, May 30, 2010
5/30/10 - Day 27
Another uneventful day...pretty much a repeat of yesterday. Patrick and I were talking and the only improvement we have noticed over the last few days is that his anger has subsided. Not completely gone, but tolerable. I guess we feel like we are at another standstill. Hopefully it will be short lived....it seems like everytime we say standstill, something happens so....let's hope it does. Maybe when rehab starts again tomorrow, that will get him moving.
His appetite is really good as long as it's food he likes. Actually he is even eating some food he never liked...veggies for instance.
Still quite a bit of jibberish...not making much sense. We noticed today though, if someone comes to visit, he usually talks about them that day or the following day...but if you ask who visited, he can't remember.
Katie gave him a pair of sunglasses...he loved them. I took a few pictures. I will post one on Facebook. Not sure if I can post it on the blog but I will try. This will be the first picture I have shared since the accident...I was afraid to post any pictures of him while he was healing, but I think he's ready.
All in all it was a good day :0)
Thank you for the prayers...love you all <3
His appetite is really good as long as it's food he likes. Actually he is even eating some food he never liked...veggies for instance.
Still quite a bit of jibberish...not making much sense. We noticed today though, if someone comes to visit, he usually talks about them that day or the following day...but if you ask who visited, he can't remember.
Katie gave him a pair of sunglasses...he loved them. I took a few pictures. I will post one on Facebook. Not sure if I can post it on the blog but I will try. This will be the first picture I have shared since the accident...I was afraid to post any pictures of him while he was healing, but I think he's ready.
All in all it was a good day :0)
Thank you for the prayers...love you all <3
Saturday, May 29, 2010
5/29/10 - Day 26
Today was a pretty uneventful day...not sure it that's good or bad.
Steven was in good mood for most of the day. Not many outbursts...and the one's he did have were very small compared to Tuesday and Wednesday from this week.
Patrick played cards with him...by playing cards I mean we will ask him which card we are showing him. However we've noticed that he cannot answer three question regarding any card...ex. what card is it? He answers a four...we ask a red or black 4? He may answer correctly...he may not. If we ask what symbol it is...he usually can't answer.
Pat was showing him some animal cards and asking which animal was on the card. He knew about 50% of them. Pat would ask what color they were and sometimes he answered sometimes he didn't. The best part was...he decided to tell us what sound the animal made. Haha...we didn't ask him to either...he just did it. It was great :)
We have noticed that he still does not have any short term memory...he cannot remember what he ate that day, who visits, what he did in therapy, where he is, why he's there, etc. He has long term memory but it is all scattered. He will tell a story that makes no sense. Today the story was, his motorcycle was on the roof.
Brenda told me someone explained a TBI to her. They said that your brain is like a filing cabinet that was tipped over. All of the information is still there, it's just not in the right order. And everything needs to be put back into place. This made a ton of sense to me. Thanks Brenna <3
He was sleeping like a baby when we left. It was nice to see that he looked so peaceful.
All in all it was a good day.
Thanks for all they prayers...love you all <3
Steven was in good mood for most of the day. Not many outbursts...and the one's he did have were very small compared to Tuesday and Wednesday from this week.
Patrick played cards with him...by playing cards I mean we will ask him which card we are showing him. However we've noticed that he cannot answer three question regarding any card...ex. what card is it? He answers a four...we ask a red or black 4? He may answer correctly...he may not. If we ask what symbol it is...he usually can't answer.
Pat was showing him some animal cards and asking which animal was on the card. He knew about 50% of them. Pat would ask what color they were and sometimes he answered sometimes he didn't. The best part was...he decided to tell us what sound the animal made. Haha...we didn't ask him to either...he just did it. It was great :)
We have noticed that he still does not have any short term memory...he cannot remember what he ate that day, who visits, what he did in therapy, where he is, why he's there, etc. He has long term memory but it is all scattered. He will tell a story that makes no sense. Today the story was, his motorcycle was on the roof.
Brenda told me someone explained a TBI to her. They said that your brain is like a filing cabinet that was tipped over. All of the information is still there, it's just not in the right order. And everything needs to be put back into place. This made a ton of sense to me. Thanks Brenna <3
He was sleeping like a baby when we left. It was nice to see that he looked so peaceful.
All in all it was a good day.
Thanks for all they prayers...love you all <3
Friday, May 28, 2010
5/28/10 - Day 25
Today was an early day...Patrick and I had a meeting at 10:00 with his doctor, social worker and therapists to learn about his progress and the expectation for his future. It was a good meeting. The doctor said he thought he was doing great. He said he is lowering his pain medication slowly to get him off of them before he comes home.
His therapists said he is doing very well. According to his speech therapist, he still has an issue with swallowing regular liquids. The breathing tube affected his vocal cords (totally normal) and a thickener is added to his liquids to prevent him from choking.
His physical and occupational therapists said he is doing great. He took a shower for the first time yesterday. Shampooed his own hair. Also took another shower today. They said he pretty much did everything he need to do all by himself. Woohoo!
The social worker and the doctor told us that is is very possible that he may be home within the next two weeks!!!!! Yep! The next two weeks!!! OMG...Holy cow. Ok...breathe...yep, we can do this. It will all depend on how he progresses and what level he is at before they will determine when he can come home.
The rest of the afternoon was pretty uneventful. Most of the day he is was very sociable and in a great mood. We played Wii...and yes...he beat me. I have never been much of a video game player and he was a nut about them. He didn't love bowling very much, but he did beat me in hunting.
He only had a few outbursts...unfortunately one of them was when his cousins, Meg, Christoper, and Jess came to visit. I think he was due for his meds, and they just came at a bad time :(.
All in all, I think it was a good day.
Thanks for the prayers...love you all <3
His therapists said he is doing very well. According to his speech therapist, he still has an issue with swallowing regular liquids. The breathing tube affected his vocal cords (totally normal) and a thickener is added to his liquids to prevent him from choking.
His physical and occupational therapists said he is doing great. He took a shower for the first time yesterday. Shampooed his own hair. Also took another shower today. They said he pretty much did everything he need to do all by himself. Woohoo!
The social worker and the doctor told us that is is very possible that he may be home within the next two weeks!!!!! Yep! The next two weeks!!! OMG...Holy cow. Ok...breathe...yep, we can do this. It will all depend on how he progresses and what level he is at before they will determine when he can come home.
The rest of the afternoon was pretty uneventful. Most of the day he is was very sociable and in a great mood. We played Wii...and yes...he beat me. I have never been much of a video game player and he was a nut about them. He didn't love bowling very much, but he did beat me in hunting.
He only had a few outbursts...unfortunately one of them was when his cousins, Meg, Christoper, and Jess came to visit. I think he was due for his meds, and they just came at a bad time :(.
All in all, I think it was a good day.
Thanks for the prayers...love you all <3
Thursday, May 27, 2010
5/27/10 - Day 24
Today, definitely was a better day. A little bit of a rough start, but it did get better. He was sitting in the lounge area when I got there. A little bit of a smile today. Debbie got to visit him which was nice. She did get to see some of his attitude though.
We looked through a bunch of pictures that we have in his room. He was able to identify everyone the first time through! The second time we tried, I would say he was about 80% correct. Woohoo!
Aimee, his physical therapist, told me he could come down for some extra therapy time today...basically to try to burn off some of his negative energy. So we went and Steven took another walk with Aimee, with her assistance of course. He walked quite a distance too. Then they walked back to the gym again. After that, she had him walk up and down some stairs...There are 4 stairs in the gym. It's funny because when he walks to the top step, he is so tall that his head is just touching the ceiling :) Then Amy told him to turn around and walked back down. And he did. Coming down, he did all 4 steps by himself! Aimee of course had her hand an inch away from him at all times, but he did it all by himself! It was awesome.
He also went to speech while I was there. His speech therapist said he wasn't very cooperative today because he was distracted by the neck brace he was wearing. He kept pulling on in. Desperately wanted it off . We just so happened to see his Dr. in the hallway and asked if he could take it off. He examined Steven and said he could keep it off during the day, but would like him to have it on at night. Woohoo...another victory :)
By the time his dinner came, Katie was with me. She helped him eat his dinner. They brought him pureed food. His diet was changed yesterday to mechanical soft (whatever that means), but they brought the wrong one. I thought for sure he wasn't going to eat it, but he did. Ate his potatoes and some vegetable (not sure what it was). I was just happy he ate.
After dinner, the nurse promised him she would put him to bed. She took him to his room, got him all cleaned up and put him in his bed. After that, he got all kinds of wonderful company...Dad, Aunt Brenda, Aunt Barb, Cindy, Lisa, & Danielle.
They were in for a real treat! He was in a wonderful mood. Stayed in bed and talked to everyone :) Mostly jibberish stories but he was talkative and NICE. It was wonderful. And he smiled :) I was so, so happy to see that smile...makes it all worth while.
All in all, it was a great day...and I am grateful :)
Please keep praying...love you all <3
We looked through a bunch of pictures that we have in his room. He was able to identify everyone the first time through! The second time we tried, I would say he was about 80% correct. Woohoo!
Aimee, his physical therapist, told me he could come down for some extra therapy time today...basically to try to burn off some of his negative energy. So we went and Steven took another walk with Aimee, with her assistance of course. He walked quite a distance too. Then they walked back to the gym again. After that, she had him walk up and down some stairs...There are 4 stairs in the gym. It's funny because when he walks to the top step, he is so tall that his head is just touching the ceiling :) Then Amy told him to turn around and walked back down. And he did. Coming down, he did all 4 steps by himself! Aimee of course had her hand an inch away from him at all times, but he did it all by himself! It was awesome.
He also went to speech while I was there. His speech therapist said he wasn't very cooperative today because he was distracted by the neck brace he was wearing. He kept pulling on in. Desperately wanted it off . We just so happened to see his Dr. in the hallway and asked if he could take it off. He examined Steven and said he could keep it off during the day, but would like him to have it on at night. Woohoo...another victory :)
By the time his dinner came, Katie was with me. She helped him eat his dinner. They brought him pureed food. His diet was changed yesterday to mechanical soft (whatever that means), but they brought the wrong one. I thought for sure he wasn't going to eat it, but he did. Ate his potatoes and some vegetable (not sure what it was). I was just happy he ate.
After dinner, the nurse promised him she would put him to bed. She took him to his room, got him all cleaned up and put him in his bed. After that, he got all kinds of wonderful company...Dad, Aunt Brenda, Aunt Barb, Cindy, Lisa, & Danielle.
They were in for a real treat! He was in a wonderful mood. Stayed in bed and talked to everyone :) Mostly jibberish stories but he was talkative and NICE. It was wonderful. And he smiled :) I was so, so happy to see that smile...makes it all worth while.
All in all, it was a great day...and I am grateful :)
Please keep praying...love you all <3
Wednesday, May 26, 2010
5/26/10 -Day 23
I think I may be at a loss for words...
Day 23 basically the same as day 22...maybe a little worse, which I didn't think was possible. What I miss the most is his smile...I haven't seen it in 2 days :(
Steven was with his therapists, Aimee and Angie when I got there this afternoon. As soon as they wheeled him down the hall I could tell I was in for another battle. Today it was just the two of us until about 4 when Katie got there.
I promised myself that I would not lose my patience...and I did a really good job I think. Every time he started swearing, I would say, we don't use bad words...right? And he would repeat, we don't use bad words.
It seems like we need to keep his attention at all times...but the problem is, his attention span is about 1 minute long. I tried cards, games, pictures, questions, coloring, anything I could think of. What seemed to satisfy him the most was walking up and down the hall. I think I walked him up and down that hall about 100 times.
He had therapy again at 2:30 (because he napped during his morning rehab). His therapists allowed me to come in with him. He walked quite a distance, he walked up and down 4 steps...all assisted of course. He also used a weight bench...did a great job with that. He behaved well for the therapists...a little nasty but not much.
When, Katie came, he was in one of his moods...we tried walking him, however, at one point, for no apparent reason, he punched Katie in the hip. Really...punched her. Later on, he slapped her arm...neither one of us saw it coming. I'm so proud of Katie, she totally keeps her cool with him, didn't really acknowledge that he did anything.
Then dinner came...and anyone that knows Steven well, they know that he is one of the pickiest eaters ever. Well, this hasn't changed. They changed his diet to soft foods today, so he got a "hospital version" steak sandwich. Looked pretty gross to me too...but I was hoping he would eat it. Nope...not having it. So the nurse, Mary, brought him a boloney sandwich. He took two bites and was done with that.
At this point, the nurse saw how agitated he was and that we were struggling with him, so she asked him if he was tired and wanted to go to bed. He said yes. I wish it was easy enough to say, let him go to bed and take a nap, however, everytime he is moved from the wheelchair to the bed, the nurses have to get a new order from the doctor. Pain in the butt.
As soon as she put him to bed, out he went. Dead tired. From what I'm told, it is normal for him to act out for numerous reasons...tired, has to go to the bathroom, hungry, in pain, but he cannot explain it to us...so he acts up.
I left when he finally fell asleep. Patrick and Cindy stayed with him. Well I guess the nap was short lived. He woke up and was as feisty as ever. The nurse gave him a shot to help calm him down, but I guess it didn't work much. Pretty much the same behavior as earlier in the day.
After struggling with him for another 2 hours, the nurse came in, gave him his evening meds, he pulled up his blanket, laid down and went to sleep. That was it, he was done.
I really hope we make it through this stage.
I guess I wasn't at a loss for words...:)
Please keep praying...still very, very needed. Love you all <3
Day 23 basically the same as day 22...maybe a little worse, which I didn't think was possible. What I miss the most is his smile...I haven't seen it in 2 days :(
Steven was with his therapists, Aimee and Angie when I got there this afternoon. As soon as they wheeled him down the hall I could tell I was in for another battle. Today it was just the two of us until about 4 when Katie got there.
I promised myself that I would not lose my patience...and I did a really good job I think. Every time he started swearing, I would say, we don't use bad words...right? And he would repeat, we don't use bad words.
It seems like we need to keep his attention at all times...but the problem is, his attention span is about 1 minute long. I tried cards, games, pictures, questions, coloring, anything I could think of. What seemed to satisfy him the most was walking up and down the hall. I think I walked him up and down that hall about 100 times.
He had therapy again at 2:30 (because he napped during his morning rehab). His therapists allowed me to come in with him. He walked quite a distance, he walked up and down 4 steps...all assisted of course. He also used a weight bench...did a great job with that. He behaved well for the therapists...a little nasty but not much.
When, Katie came, he was in one of his moods...we tried walking him, however, at one point, for no apparent reason, he punched Katie in the hip. Really...punched her. Later on, he slapped her arm...neither one of us saw it coming. I'm so proud of Katie, she totally keeps her cool with him, didn't really acknowledge that he did anything.
Then dinner came...and anyone that knows Steven well, they know that he is one of the pickiest eaters ever. Well, this hasn't changed. They changed his diet to soft foods today, so he got a "hospital version" steak sandwich. Looked pretty gross to me too...but I was hoping he would eat it. Nope...not having it. So the nurse, Mary, brought him a boloney sandwich. He took two bites and was done with that.
At this point, the nurse saw how agitated he was and that we were struggling with him, so she asked him if he was tired and wanted to go to bed. He said yes. I wish it was easy enough to say, let him go to bed and take a nap, however, everytime he is moved from the wheelchair to the bed, the nurses have to get a new order from the doctor. Pain in the butt.
As soon as she put him to bed, out he went. Dead tired. From what I'm told, it is normal for him to act out for numerous reasons...tired, has to go to the bathroom, hungry, in pain, but he cannot explain it to us...so he acts up.
I left when he finally fell asleep. Patrick and Cindy stayed with him. Well I guess the nap was short lived. He woke up and was as feisty as ever. The nurse gave him a shot to help calm him down, but I guess it didn't work much. Pretty much the same behavior as earlier in the day.
After struggling with him for another 2 hours, the nurse came in, gave him his evening meds, he pulled up his blanket, laid down and went to sleep. That was it, he was done.
I really hope we make it through this stage.
I guess I wasn't at a loss for words...:)
Please keep praying...still very, very needed. Love you all <3
Tuesday, May 25, 2010
5/25/10 - Day 22
Well Steven had two really good days in a row...I should learn to prepare myself for bad days...
Today definitely wasn't his best day. EXTREMELY agitated. Very,very nasty to everyone except Patrick and he nurses. Lots and lots of bad words today. It's funny that he doesn't do it to Pat or the nurses.
The Dr. said it's partially because they are lowering his pain medication and part of the injury.
His therapists said he did very well. Walked quite a bit. Named numerous things while looking outside. His speech therapist said he was about 50/50 with the responses he gave.
I'm hoping for a better day tomorrow :)
Thanks for all of the prayers. Love you all <3
Today definitely wasn't his best day. EXTREMELY agitated. Very,very nasty to everyone except Patrick and he nurses. Lots and lots of bad words today. It's funny that he doesn't do it to Pat or the nurses.
The Dr. said it's partially because they are lowering his pain medication and part of the injury.
His therapists said he did very well. Walked quite a bit. Named numerous things while looking outside. His speech therapist said he was about 50/50 with the responses he gave.
I'm hoping for a better day tomorrow :)
Thanks for all of the prayers. Love you all <3
Monday, May 24, 2010
5/24/10 - Day 21
Day 21! Three weeks today...
When I arrived, Steven was being pushed down the hall by his speech therapist...it was the first time I have seen him in regular clothes! It was great! He smiled as soon as he saw me...:)
The therapist told me, he did great today. In OT&PT, they had him walking with assistance of course...I think it's going to be quite a while before he will be able to do that. God forbid he falls. He also got to each his first meal! Ground ham...he didn't like it so much. Told me yuck...lol
He told his speech therapist where he went to high school, that he lived in Niagara Falls, and that his parents built their house. Which was all right! Woohoo!
It was just Steven and I for most of the afternoon...which was nice. We tried to play checkers, which lasted about 2 minutes. He flipped thru some magazines. He tried using my phone...was having quite the conversation with Cindy...haha who was not on the other end of the phone...but he was happy.
He had a few visitors today...Lisa, his friend Pauly, and Aunt Bessy :) I think he really likes visitors...almost every time someone walks in he smiles. It's a beautiful sight to see.
He still has a lot of confusion too. He asked Katie if she was getting married...lol. Sometimes he knows you...sometimes he doesn't. He called Katie, Marissa. Not sure who Marissa is :)
He also has some funny moments. Pat asked him who Katie was, and he said "Ho"...then he kicked her lightly and said, "just kidding"! Haha...He has a sense of humor :)
He seems to go into different moods...Fun, agitated-mean, tired, repeat. During his mean stage today, he said "why are you being such a bitch?" OMG...The problem is I just wanted to laugh, but I know if I do, it will just make it worse. I know this isn't really him, so I can't get mad...just gotta laugh.
All in all, I thought it was a good day :)
Thanks for all the prayers...love you all <3
When I arrived, Steven was being pushed down the hall by his speech therapist...it was the first time I have seen him in regular clothes! It was great! He smiled as soon as he saw me...:)
The therapist told me, he did great today. In OT&PT, they had him walking with assistance of course...I think it's going to be quite a while before he will be able to do that. God forbid he falls. He also got to each his first meal! Ground ham...he didn't like it so much. Told me yuck...lol
He told his speech therapist where he went to high school, that he lived in Niagara Falls, and that his parents built their house. Which was all right! Woohoo!
It was just Steven and I for most of the afternoon...which was nice. We tried to play checkers, which lasted about 2 minutes. He flipped thru some magazines. He tried using my phone...was having quite the conversation with Cindy...haha who was not on the other end of the phone...but he was happy.
He had a few visitors today...Lisa, his friend Pauly, and Aunt Bessy :) I think he really likes visitors...almost every time someone walks in he smiles. It's a beautiful sight to see.
He still has a lot of confusion too. He asked Katie if she was getting married...lol. Sometimes he knows you...sometimes he doesn't. He called Katie, Marissa. Not sure who Marissa is :)
He also has some funny moments. Pat asked him who Katie was, and he said "Ho"...then he kicked her lightly and said, "just kidding"! Haha...He has a sense of humor :)
He seems to go into different moods...Fun, agitated-mean, tired, repeat. During his mean stage today, he said "why are you being such a bitch?" OMG...The problem is I just wanted to laugh, but I know if I do, it will just make it worse. I know this isn't really him, so I can't get mad...just gotta laugh.
All in all, I thought it was a good day :)
Thanks for all the prayers...love you all <3
Sunday, May 23, 2010
5/23/10 - Day 20
WHAT A DAY!! Yesterday I said, I hoped today was better and...boy was it!
Steven was in a visitors lounge today, vs his room. This was so much nicer. Just more room...had a nice window and a TV. I sat with Steven and within a few minutes...he was talking! Really, really talking. I asked him a few question, like, what color is the sky? His response was "blue" while looking at me like...are you really asking me that question? I then asked him, what is the color of the grass? His response was "green"... but again, with another look like...are you going to ask me stupid questions all day? OMG it was priceless. I think I love the faces he makes as much as I love how much he was talking.
A ton of interaction today...lots of talking. Knew almost everyone in pictures that I showed to him. I asked him who I was and he said Barb. I asked him what he calls me and he said Barbara...haha. I asked him the same questions later and he said my name was Afroman! What? Really? Then he said...Katie told me to say it! Boy we are in for one hell of a ride with this boy! I hope it never ends :)
Another amazing thing was he read a very short sentence from the cover of a magazine. If I didn't witness it, I don't know if I would have believed it. But he did it! I tried a few more times to get him to do it...but no go.
Don't get me wrong...he was not like this all day. He goes in and out of socializing. For quite a while, he would just stare at the wall. I assumed it was the meds that were causing this "in and out". But the nurse, Julie, said no. It's actually the brain damage. As long as I know what it is, we can deal with it.
So...Pat and I were just sitting with him...during one of his quiet times, and here comes Dr. Wang with a yogurt and a cup of juice. The Dr. says, if he can eat and drink these, I'll take the feeding tube out! Yep the infamous damn tube that he pulled so many times, we lost count! And he did it! He ate and drank, with no issues and the Dr. pulled out his feeding tube! Woohoo!!! Happy dance!!
Then the Dr. tells nurse Julie, take the catheter out when he goes to bed tonight...and they did! No catheter either!! What a day!!!
Tomorrow Steven will start his therapy. 3 hours per day. I cannot wait to see how far he goes once his therapy starts.
Driving home, I had tears...however, this time they were happy tears. For the first time, I truly in my hear believe that when this journey is finally over, he will be ok. Truly will be ok.
Thank you for all they prayers...love you all <3
Steven was in a visitors lounge today, vs his room. This was so much nicer. Just more room...had a nice window and a TV. I sat with Steven and within a few minutes...he was talking! Really, really talking. I asked him a few question, like, what color is the sky? His response was "blue" while looking at me like...are you really asking me that question? I then asked him, what is the color of the grass? His response was "green"... but again, with another look like...are you going to ask me stupid questions all day? OMG it was priceless. I think I love the faces he makes as much as I love how much he was talking.
A ton of interaction today...lots of talking. Knew almost everyone in pictures that I showed to him. I asked him who I was and he said Barb. I asked him what he calls me and he said Barbara...haha. I asked him the same questions later and he said my name was Afroman! What? Really? Then he said...Katie told me to say it! Boy we are in for one hell of a ride with this boy! I hope it never ends :)
Another amazing thing was he read a very short sentence from the cover of a magazine. If I didn't witness it, I don't know if I would have believed it. But he did it! I tried a few more times to get him to do it...but no go.
Don't get me wrong...he was not like this all day. He goes in and out of socializing. For quite a while, he would just stare at the wall. I assumed it was the meds that were causing this "in and out". But the nurse, Julie, said no. It's actually the brain damage. As long as I know what it is, we can deal with it.
So...Pat and I were just sitting with him...during one of his quiet times, and here comes Dr. Wang with a yogurt and a cup of juice. The Dr. says, if he can eat and drink these, I'll take the feeding tube out! Yep the infamous damn tube that he pulled so many times, we lost count! And he did it! He ate and drank, with no issues and the Dr. pulled out his feeding tube! Woohoo!!! Happy dance!!
Then the Dr. tells nurse Julie, take the catheter out when he goes to bed tonight...and they did! No catheter either!! What a day!!!
Tomorrow Steven will start his therapy. 3 hours per day. I cannot wait to see how far he goes once his therapy starts.
Driving home, I had tears...however, this time they were happy tears. For the first time, I truly in my hear believe that when this journey is finally over, he will be ok. Truly will be ok.
Thank you for all they prayers...love you all <3
Saturday, May 22, 2010
5/22/10 - Day 19 - PM Post
Hi Everyone,
I decided not to post in the mornings anymore unless there is an issue of some kind or something great to tell everyone. Most of the calls in the morning to the nurse are uneventful.
So, today I didn't get up to the hospital until later. I went to a benefit for a friend. It was kind of hard for me. It's amazing how much you want to be there when it's someone you love so much.
Today, wasn't Steven's best day...for some reason he has not been as interactive as before. When he did talk, it was just a whisper. He would shake his head yes sometimes. I still think he really just says yes to almost everything you ask him.
The nurses tried to put him in a wheelchair today. This was before I got there, and I guess he was not very comfortable. So then they tried a different chair...one that reclined. This is what was going on when Pat and I arrived. Well the chair didn't work right and every time he sat up, he almost fell forward. So...after some prodding with the nurses, they found a different chair. This one was better.
During all of this moving, he did take a few steps from one chair to the other. The first time, he did it pretty well...the second time, not so much. He didn't want to put his feet down.
Finally, after all of the moving around and he was settled, we were able to spend some time with him. As I said, earlier, he isn't socializing very much. Not many facial expressions, eye contact or talking. The Dr. stated he was in stage 4-5 of the Rancho Los Amigos Scale and that this stage is extremely tough to get through. It's definitely got us worried.
I asked for the Dr. to come in. Had a ton of questions for him. Hopefully we can get some of his issues under control. I found out he didn't sleep much last night. Because he was restless when we left, I just called to see how he is doing. They said, he's still awake. The nurse said this is normal for a head trauma patient. It's just weird for us because he pretty much has been sleeping since the accident. Never expected to hear he won't sleep.
Well, let's hope tomorrow is a little better. I guess we just feel like we are at a stand still. this too shall pass
Good night everyone...thanks for the prayers...love you all <3
I decided not to post in the mornings anymore unless there is an issue of some kind or something great to tell everyone. Most of the calls in the morning to the nurse are uneventful.
So, today I didn't get up to the hospital until later. I went to a benefit for a friend. It was kind of hard for me. It's amazing how much you want to be there when it's someone you love so much.
Today, wasn't Steven's best day...for some reason he has not been as interactive as before. When he did talk, it was just a whisper. He would shake his head yes sometimes. I still think he really just says yes to almost everything you ask him.
The nurses tried to put him in a wheelchair today. This was before I got there, and I guess he was not very comfortable. So then they tried a different chair...one that reclined. This is what was going on when Pat and I arrived. Well the chair didn't work right and every time he sat up, he almost fell forward. So...after some prodding with the nurses, they found a different chair. This one was better.
During all of this moving, he did take a few steps from one chair to the other. The first time, he did it pretty well...the second time, not so much. He didn't want to put his feet down.
Finally, after all of the moving around and he was settled, we were able to spend some time with him. As I said, earlier, he isn't socializing very much. Not many facial expressions, eye contact or talking. The Dr. stated he was in stage 4-5 of the Rancho Los Amigos Scale and that this stage is extremely tough to get through. It's definitely got us worried.
I asked for the Dr. to come in. Had a ton of questions for him. Hopefully we can get some of his issues under control. I found out he didn't sleep much last night. Because he was restless when we left, I just called to see how he is doing. They said, he's still awake. The nurse said this is normal for a head trauma patient. It's just weird for us because he pretty much has been sleeping since the accident. Never expected to hear he won't sleep.
Well, let's hope tomorrow is a little better. I guess we just feel like we are at a stand still. this too shall pass
Good night everyone...thanks for the prayers...love you all <3
Friday, May 21, 2010
5/21/10 - Day 18 - PM Post Part II
So as I'm sitting on Brenda's patio, about to fall asleep, she gave me the great idea that I could write the blog while relaxing on this beautiful patio...
What did I say the other day, holy cow...what a day??? I think I forget what other days were like.
Holy cow what a day!! As soon as I walk in, I find out that they are moving Steven. He was moved to Rehab on the 8th floor. It went really quick...within 1/2 hour he was moved. Then we (Katie and I) met with the floor greeter...she gave us tons of info, rules for th floor, etc. The immediately had a speech evaluation. After that his new Dr, came in to see him. I was a little overwhelmed with info...can't imagine how overwhelmed he was.
He will start rehab on Monday. 1 hour each of occupational therapy, physical therapy and speech therapy. We will find out what the hours of therapy are on Monday. Not sure if it will be during our visitation time or not.
So after all of that, he was laying there for quite a while. Very quiet. Not really interested in talking. I thought, ok, maybe we are moving onto a new stage? Meds changed? It was just nic to sit with him.
After a little while, boy did things change...he, of course, wanted the mitts off, wanted out of bed...so after our usual struggle, he decided to push on my stomach with both feet, to get me out of the way so he can get out of the bed. He started hitting me with his "boxing glove" and then he decided to spit at me! Ok...totally was not expecting that! I am told that this is totally normal...nothing to be concerned about. Oh boy...finally had to have the nurse come in.
Of course he slept most of the afternoon after the nurse came in. Patrick and Cindy came in and he was pretty quiet for most of their time. Not very interactive. Still fighting to get boxing gloves off but not out of control. We asked him who Pat is...he said "that's my Dad"...sweet moment :)
Other than trying to pull his IV out with his teeth, the rest of the night was good.
Ok...so I'm about to fall asleep on Brenda's patio...good night all
As always, thanks for all the prayers...love you all <3
What did I say the other day, holy cow...what a day??? I think I forget what other days were like.
Holy cow what a day!! As soon as I walk in, I find out that they are moving Steven. He was moved to Rehab on the 8th floor. It went really quick...within 1/2 hour he was moved. Then we (Katie and I) met with the floor greeter...she gave us tons of info, rules for th floor, etc. The immediately had a speech evaluation. After that his new Dr, came in to see him. I was a little overwhelmed with info...can't imagine how overwhelmed he was.
He will start rehab on Monday. 1 hour each of occupational therapy, physical therapy and speech therapy. We will find out what the hours of therapy are on Monday. Not sure if it will be during our visitation time or not.
So after all of that, he was laying there for quite a while. Very quiet. Not really interested in talking. I thought, ok, maybe we are moving onto a new stage? Meds changed? It was just nic to sit with him.
After a little while, boy did things change...he, of course, wanted the mitts off, wanted out of bed...so after our usual struggle, he decided to push on my stomach with both feet, to get me out of the way so he can get out of the bed. He started hitting me with his "boxing glove" and then he decided to spit at me! Ok...totally was not expecting that! I am told that this is totally normal...nothing to be concerned about. Oh boy...finally had to have the nurse come in.
Of course he slept most of the afternoon after the nurse came in. Patrick and Cindy came in and he was pretty quiet for most of their time. Not very interactive. Still fighting to get boxing gloves off but not out of control. We asked him who Pat is...he said "that's my Dad"...sweet moment :)
Other than trying to pull his IV out with his teeth, the rest of the night was good.
Ok...so I'm about to fall asleep on Brenda's patio...good night all
As always, thanks for all the prayers...love you all <3
5/21/10 - PM post
Hi Everyone,
I may not be able to post tonight. We have plans after the hospital. I will get it done 1st thing in the morning though. One bit of good news is he was moved to the Rehab floor today. Starts rehab on Monday!!
I may not be able to post tonight. We have plans after the hospital. I will get it done 1st thing in the morning though. One bit of good news is he was moved to the Rehab floor today. Starts rehab on Monday!!
5/21/10 - Day 18 - AM Post
Well...guess what he did??? Yep...pulled his feeding tube again. Cannot wait until he can come off of that thing.
I spoke to his nurse, Courtney. Other than pulling his tube, she said he had a good night.
Looking forward to anther good day with him.
Thanks for the prayers...love you all <3
I spoke to his nurse, Courtney. Other than pulling his tube, she said he had a good night.
Looking forward to anther good day with him.
Thanks for the prayers...love you all <3
Thursday, May 20, 2010
5/20/10 - Day 17 - PM Post
Hi Everyone,
So I've decided to write the blog from the hospital while Steven is sleeping. This way, hopefully, I can copy and paste it to the website when I get home. Its all about being efficient these days.
Steven was wide awake and ready to rumble when I got here today. He was calm at first. Not as interactive as yesterday. The TV is on today and I think he was more interested in the TV than his visitors. That's ok. I was happy to see he was interested!!
After he was bored with the TV, he wanted out of the bed again. I nearly had to lift him and move him back into bed. Its amazing what you can do when you HAVE to. He's heavy! After that struggle, he then decided he wanted the mitts off again. During this struggle, he learned a new word..."Get these f#*?!*# things off". Yep..said it more than once too. The problem was, Katie and I started laughing, and we couldn't stop. We didn't want him to see us laughing because he was really mad at this point...and I was so afraid of making it worse. But it was great to laugh
That's when Ann, his nurse, helped us out with some medication. Now he's just chillin...kinda like he's king of the world. Arm above his head...legs crossed. Looks like he should be sitting in a lounge chair on a beach somewhere :) I hope that is exactly where he is in his dreams.
He had lots of visitors today...He told cousin Jenny he loved her. This is the nice time. We do get some time with good interaction...without him being a crazy man.
I told him he looks good and he said..."I feel good". Not sure whether he meant it or not, but that's ok! I loved it <3
As the afternoon went on, we tried to hold off on the medication for as long as we could. Only until we couldn't control him anymore. He used his "new word" a few more times through out the day, but all in all, it was a great day.
The Rehab Dr. gave me a website to look at regarding TBI (Traumatic Brain Injuries) if anyone wants to look at more info about his condition.
http://www.waiting.com/rancholosamigos.html
And one last thing....We just want to thank all of our friends and family for all of the awesome dinners we have received over the last few weeks...I will never be able to fully express how helpful this has been for us.
PS..I put all of your dishes in the bin, if you have time to come pick them up. If not, I will get them back to you as soon as I can.
Thanks again for the prayers...love you all <3
So I've decided to write the blog from the hospital while Steven is sleeping. This way, hopefully, I can copy and paste it to the website when I get home. Its all about being efficient these days.
Steven was wide awake and ready to rumble when I got here today. He was calm at first. Not as interactive as yesterday. The TV is on today and I think he was more interested in the TV than his visitors. That's ok. I was happy to see he was interested!!
After he was bored with the TV, he wanted out of the bed again. I nearly had to lift him and move him back into bed. Its amazing what you can do when you HAVE to. He's heavy! After that struggle, he then decided he wanted the mitts off again. During this struggle, he learned a new word..."Get these f#*?!*# things off". Yep..said it more than once too. The problem was, Katie and I started laughing, and we couldn't stop. We didn't want him to see us laughing because he was really mad at this point...and I was so afraid of making it worse. But it was great to laugh
That's when Ann, his nurse, helped us out with some medication. Now he's just chillin...kinda like he's king of the world. Arm above his head...legs crossed. Looks like he should be sitting in a lounge chair on a beach somewhere :) I hope that is exactly where he is in his dreams.
He had lots of visitors today...He told cousin Jenny he loved her. This is the nice time. We do get some time with good interaction...without him being a crazy man.
I told him he looks good and he said..."I feel good". Not sure whether he meant it or not, but that's ok! I loved it <3
As the afternoon went on, we tried to hold off on the medication for as long as we could. Only until we couldn't control him anymore. He used his "new word" a few more times through out the day, but all in all, it was a great day.
The Rehab Dr. gave me a website to look at regarding TBI (Traumatic Brain Injuries) if anyone wants to look at more info about his condition.
http://www.waiting.com/rancholosamigos.html
And one last thing....We just want to thank all of our friends and family for all of the awesome dinners we have received over the last few weeks...I will never be able to fully express how helpful this has been for us.
PS..I put all of your dishes in the bin, if you have time to come pick them up. If not, I will get them back to you as soon as I can.
Thanks again for the prayers...love you all <3
5/20/10 - Day 17 - AM Post
Good Morning Everyone,
Just talked to Steven's nurse, Ann. She just came on at 7am...but said, Steven had a good night. He was a little restless but nothing too bad.
He only pulled out his feeding tube once last night...I guess that's progress..huh? Haha.. He had a pretty uneventful night, which is great in my book.
Will see him at 12...can't wait to see what today brings :)
Please keep praying...love you all <3
Just talked to Steven's nurse, Ann. She just came on at 7am...but said, Steven had a good night. He was a little restless but nothing too bad.
He only pulled out his feeding tube once last night...I guess that's progress..huh? Haha.. He had a pretty uneventful night, which is great in my book.
Will see him at 12...can't wait to see what today brings :)
Please keep praying...love you all <3
Wednesday, May 19, 2010
5/19/10 - Day 16 - PM Post
Holy cow...what a day.
Steven has come so far in 48 hours. He said quite a few words today...Hi, bye, take that, let's go. I asked if he knew who I was and he said...MOM! Also said, Kate, Honey, I want a kiss and let me outta here! It was incredible.
He's really feisty when the meds wear off...Steven and Patrick "wrestled" pretty good tonight. Took everything for Pat to keep him in the bed. He wants out of that bed...actually think he started crying because he wanted out so bad. Broke our hearts.
He also pulled out his feeding tube again...got his mitt off, and pulled the tube. We were out of the room at the time. When Lisa (Cindy's sister) and I went back in, he was laying in the bed completely still. Actually had a look of mischievous on his face. Took us a second to realize what he did. He was just laying there with a look like...yeah, I did it...and I don't care if your mad. He's so lucky I can't yell at him :)
I was trying to clean his mouth for him and told him to open his mouth...instead, he showed me his teeth...he sat there showing his teeth for about 10 seconds...I couldn't help but laugh. He looked beautiful! That is until he decided to bite me. Yep..he bit me. He bit down on my finger and would not let go. We had to squeeze his cheeks to get him to let go of me. Unbelievable.
He is even getting visits from some of his former nurses...he's such a charmer...lol. Actually, I had a conversation with someone today who said, Steven is very charismatic...soooo true. He has quite the charm. Can't wait to see that again.
Patrick actually got him to laugh tonight...it was priceless! Can't remember what they were doing...I think they were "boxing". But it was an actual laugh! Couldn't believe it.
The Doctor from the Rehab floor came down for an evaluation today. He said that Steven could remain in this room for up to a week and then he will go to the Rehab floor. Also said that he has showed great recovery so far...and that he believes eventually, he will be fine.
The address of ECMC is 462 Grider St., Buffalo, NY 14215. Steven's room is 751B. I had a few people ask so they could send him cards so I figured I would give it to everyone.
What a day...
Thanks everyone for the prayers...please keep them coming. Love you all <3
Steven has come so far in 48 hours. He said quite a few words today...Hi, bye, take that, let's go. I asked if he knew who I was and he said...MOM! Also said, Kate, Honey, I want a kiss and let me outta here! It was incredible.
He's really feisty when the meds wear off...Steven and Patrick "wrestled" pretty good tonight. Took everything for Pat to keep him in the bed. He wants out of that bed...actually think he started crying because he wanted out so bad. Broke our hearts.
He also pulled out his feeding tube again...got his mitt off, and pulled the tube. We were out of the room at the time. When Lisa (Cindy's sister) and I went back in, he was laying in the bed completely still. Actually had a look of mischievous on his face. Took us a second to realize what he did. He was just laying there with a look like...yeah, I did it...and I don't care if your mad. He's so lucky I can't yell at him :)
I was trying to clean his mouth for him and told him to open his mouth...instead, he showed me his teeth...he sat there showing his teeth for about 10 seconds...I couldn't help but laugh. He looked beautiful! That is until he decided to bite me. Yep..he bit me. He bit down on my finger and would not let go. We had to squeeze his cheeks to get him to let go of me. Unbelievable.
He is even getting visits from some of his former nurses...he's such a charmer...lol. Actually, I had a conversation with someone today who said, Steven is very charismatic...soooo true. He has quite the charm. Can't wait to see that again.
Patrick actually got him to laugh tonight...it was priceless! Can't remember what they were doing...I think they were "boxing". But it was an actual laugh! Couldn't believe it.
The Doctor from the Rehab floor came down for an evaluation today. He said that Steven could remain in this room for up to a week and then he will go to the Rehab floor. Also said that he has showed great recovery so far...and that he believes eventually, he will be fine.
The address of ECMC is 462 Grider St., Buffalo, NY 14215. Steven's room is 751B. I had a few people ask so they could send him cards so I figured I would give it to everyone.
What a day...
Thanks everyone for the prayers...please keep them coming. Love you all <3
5/19/10 - Day 16 - AM Post
Just spoke with Steven's nurse, Adrian (yes I still get to call in the morning to check on him). She said he is doing much better. They gave him some pain medication, which helped with his agitation. She said he is still interactive, so at least the pain meds aren't making him pass out.
Visitation is now from 12-8...going to be a long day, but I can't wait to go see him today. Little better everyday.
Please keep praying...love you all <3
Visitation is now from 12-8...going to be a long day, but I can't wait to go see him today. Little better everyday.
Please keep praying...love you all <3
Tuesday, May 18, 2010
5/18/10 - Day 15 - PM Post
Well Steven is now onto the next phase of his recovery...he was moved out of TICU today. Little bit of a shock to our system too...staff is not as attentive as they were in ICU, but he will make it through.
He has a roommate...which I think may be good. He is an older gentleman who seems to have his wits about him. Steven cannot call a nurse if he has a problem, so hopefully, if his roommate hears any fussing, he can call the nurse for Steven.
He is in the canopy bed...this bed is kind of like a big person play pen...it has zipper sides which are made of a cloth/rope mesh. We can unzip the sides while we visit, and zip him back up when we leave. Not an easy thing for us to do that's for sure. I know it's for his safety...but was just a little strange. Luckily he fell asleep about 10 min before we left and somehow Patrick zipped it up without him waking up.
I actually feel like he was a little better this evening from this afternoon. He said a few words tonight...Hi and bye. He tried to tell us something a few times but we could not understand what he was saying. It was frustrating for all of us.
He's still trying to get those damn mitts off so he can pull out his tubes and IV's. I think this is the most difficult part...can't wait until he is off these things. So afraid he will hurt himself.
Patrick gave him a picture of his grandma ducks today...Grandma ducks was Steven's nickname for her. He took the picture in his hand and looked at it for a while. Was amazing to see.
Not sure how long he will be on this floor. Really depends on his progress. After this he will go to Rehab treatment. Can't wait for it.
Unfortunately, they would not let me stay in his room with him tonight. One reason is because he is sharing a room and the other is because he is staying in the tent bed. I was going to stay to hopefully prevent him from getting up and getting hurt...but he definitely won't be able to get out of that bed. His nurse only has 4 patients...which I don't think is terrible. I have faith that they will take great care of him.
Definitely a busy day for us all so...goodnight world...Patrick and I are sleep walking right now :)
As always, please keep praying...love you all :)
He has a roommate...which I think may be good. He is an older gentleman who seems to have his wits about him. Steven cannot call a nurse if he has a problem, so hopefully, if his roommate hears any fussing, he can call the nurse for Steven.
He is in the canopy bed...this bed is kind of like a big person play pen...it has zipper sides which are made of a cloth/rope mesh. We can unzip the sides while we visit, and zip him back up when we leave. Not an easy thing for us to do that's for sure. I know it's for his safety...but was just a little strange. Luckily he fell asleep about 10 min before we left and somehow Patrick zipped it up without him waking up.
I actually feel like he was a little better this evening from this afternoon. He said a few words tonight...Hi and bye. He tried to tell us something a few times but we could not understand what he was saying. It was frustrating for all of us.
He's still trying to get those damn mitts off so he can pull out his tubes and IV's. I think this is the most difficult part...can't wait until he is off these things. So afraid he will hurt himself.
Patrick gave him a picture of his grandma ducks today...Grandma ducks was Steven's nickname for her. He took the picture in his hand and looked at it for a while. Was amazing to see.
Not sure how long he will be on this floor. Really depends on his progress. After this he will go to Rehab treatment. Can't wait for it.
Unfortunately, they would not let me stay in his room with him tonight. One reason is because he is sharing a room and the other is because he is staying in the tent bed. I was going to stay to hopefully prevent him from getting up and getting hurt...but he definitely won't be able to get out of that bed. His nurse only has 4 patients...which I don't think is terrible. I have faith that they will take great care of him.
Definitely a busy day for us all so...goodnight world...Patrick and I are sleep walking right now :)
As always, please keep praying...love you all :)
5/18/10 - Day 15 - AM Post
Just spoke to Steven's nurse, Tim. He said he had a good night, and said that he is wide awake. He still won't cough on command so they are going to have to suction him...he just loves that :(
The doctors have not done rounds yet today...but once they do, they will decide whether or not to move him to a different floor. Not sure if he will get moved because they are still concerned about the congestion in his chest and that he won't cough.
The other reason he may not get moved today is Steven needs a canopy bed and we need to wait until one is available...this will prevent him from being an escape artist again. Not sure what a canopy bed is...but I guess we will find out.
If they move him, I plan on staying the night with him. I talked to the nurses about it yesterday. They seem to think he may have anxiety from the move, and that if someone is with him, it can help keep him calm. (Thanks Shelly for the advice)
Will keep you posted.
Please keep praying...the prayers are totally working! Love you all <3
The doctors have not done rounds yet today...but once they do, they will decide whether or not to move him to a different floor. Not sure if he will get moved because they are still concerned about the congestion in his chest and that he won't cough.
The other reason he may not get moved today is Steven needs a canopy bed and we need to wait until one is available...this will prevent him from being an escape artist again. Not sure what a canopy bed is...but I guess we will find out.
If they move him, I plan on staying the night with him. I talked to the nurses about it yesterday. They seem to think he may have anxiety from the move, and that if someone is with him, it can help keep him calm. (Thanks Shelly for the advice)
Will keep you posted.
Please keep praying...the prayers are totally working! Love you all <3
Monday, May 17, 2010
5/17/10 - Day 14-PM Post -Part II
I'm writing this on my Ipod because i'm to lazy to turn on my computer...so I apologize up front for any typos.
It will be brief because he slept for the entire visit. He was sleeping because the little stinker got himselff out of bed today. The nurse found him sitting on the floor of his room. Pulled out all of his iv's and feeding tube again. 6 times for the IV. Lost count on the feeding tube.
So needless to say they had to give him Meds to relax him and he has the mitts back on and a vest that's attached to the bed to keep him from getting out of bed again.
Couple more grey hairs for mom...
It will be brief because he slept for the entire visit. He was sleeping because the little stinker got himselff out of bed today. The nurse found him sitting on the floor of his room. Pulled out all of his iv's and feeding tube again. 6 times for the IV. Lost count on the feeding tube.
So needless to say they had to give him Meds to relax him and he has the mitts back on and a vest that's attached to the bed to keep him from getting out of bed again.
Couple more grey hairs for mom...
5/17/10 - Day 14 - PM Post - Part I
Wow...what a day!!
We went for the afternoon visit...and I walk in his room to find Steven sitting in a chair! Holy cow...sitting in a chair. Never, never expected to see that. Not even something that crossed my mind. He of course is strapped into the chair because he can't sit up by himself yet...but he's in a chair! Ughhh
So after talking to him for a few minutes, I then realize...they removed his stitches! I think I'm delirious at this point. Really? 2 weeks after brain surgery, the stitches and staples are removed!
When I finally get to talk to the nurse, she said...he still has a lot of "stuff" in his lungs. They plan on keeping him for another day in ICU then he will be transfered to another floor.
The nurse, Nancy, also told me that he spoke again...this time he said, "take these damn things off of me"...talking about his mitts. My wonderful husband says..."that's my boy" :)Haha...
Well, that's it for now...I think that is quite enough for today...
I will try to post after the 5:00 visit, however, I have mass at 6:45 tonight...but I will do my best. My fantastic nephew, Colin is being confirmed tonight, and I was blessed enough to be asked to be his sponsor. So...not sure how late I will be.
This one is for Bubba from Aunt Brenda
http://www.metrolyrics.com/im-alive-with-dave-matthews-lyrics-kenny-chesney.html
"I'm Alive" by Kenny Chesney and Dave Matthews
So damn easy to say that life's so hard
Everybody's got their share of battle scars
As for me, I'd like to thank my lucky stars that I'm alive and well...
It'd be easy to add up all the pain
And all the dreams you sat and watched go up in flames
Dwell on the wreckage as it smolders in the rain
But not me...I'm alive
And today you know that's good enough for me
Breathin' in and out's a blessing can't you see
Today's the first day of the rest of my life and I'm alive
And well...I'm alive and well
The stars are dancin' on the water here tonight
It's gonna fall a soul when there's not a soul in sight
This boat has caught its wind and brought me back to life now I'm alive and well
We went for the afternoon visit...and I walk in his room to find Steven sitting in a chair! Holy cow...sitting in a chair. Never, never expected to see that. Not even something that crossed my mind. He of course is strapped into the chair because he can't sit up by himself yet...but he's in a chair! Ughhh
So after talking to him for a few minutes, I then realize...they removed his stitches! I think I'm delirious at this point. Really? 2 weeks after brain surgery, the stitches and staples are removed!
When I finally get to talk to the nurse, she said...he still has a lot of "stuff" in his lungs. They plan on keeping him for another day in ICU then he will be transfered to another floor.
The nurse, Nancy, also told me that he spoke again...this time he said, "take these damn things off of me"...talking about his mitts. My wonderful husband says..."that's my boy" :)Haha...
Well, that's it for now...I think that is quite enough for today...
I will try to post after the 5:00 visit, however, I have mass at 6:45 tonight...but I will do my best. My fantastic nephew, Colin is being confirmed tonight, and I was blessed enough to be asked to be his sponsor. So...not sure how late I will be.
This one is for Bubba from Aunt Brenda
http://www.metrolyrics.com/im-alive-with-dave-matthews-lyrics-kenny-chesney.html
"I'm Alive" by Kenny Chesney and Dave Matthews
So damn easy to say that life's so hard
Everybody's got their share of battle scars
As for me, I'd like to thank my lucky stars that I'm alive and well...
It'd be easy to add up all the pain
And all the dreams you sat and watched go up in flames
Dwell on the wreckage as it smolders in the rain
But not me...I'm alive
And today you know that's good enough for me
Breathin' in and out's a blessing can't you see
Today's the first day of the rest of my life and I'm alive
And well...I'm alive and well
The stars are dancin' on the water here tonight
It's gonna fall a soul when there's not a soul in sight
This boat has caught its wind and brought me back to life now I'm alive and well
5/17/10 - Day 14 - AM Post
Steven's nurse, Nancy, is busy with another patient right now. However, they did say that he is stable.
I'm not going to bug them...will find out any info at the 12:00 visit today.
Sorry :(
Love you all <3
I'm not going to bug them...will find out any info at the 12:00 visit today.
Sorry :(
Love you all <3
Sunday, May 16, 2010
5/16/10 - Day 13 - PM Post
Everyday seems to get a tiny, tiny bit better.
He was a pretty fiesty today...did everything in his power to get the mitts off his hands...put his hand under his other arm...squeezed it to pull the mitt off. Put the mitt up to his mouth (which is covered by an oxygen mask) and tried to bite the mitt to pull it off. Amazing...he's barely coherent but is trying to figure out how to get these damn mitts off.
Tried very hard to get out of bed again...still doesn't comprehend what he is doing...seems to stare off into space...but knows he wants to get up.
During the evening visit, he was trying to get up...Patrick was trying to keep him down...Pat put his head down towards Stevens and they touched foreheads...and they stayed like that for about 10 minutes. Every time Patrick tried to move, Steven would get agitated...so, they just sat together :) Unfortunately I missed it. We can only have 2 people in the room at a time and Grandpa Duane was blessed enough to see this today. That's ok, I'm sure I have many more moments to come.
And the best part....he spoke today!! He was trying to get out of bed and Cindy told him...Steven, lay back down and he said "I don't want to"! Again...I missed it but he said it again later and I did hear him say it the second time.
He also shook his head no for Cindy's sister, Lisa. And he raised his hand to touch Patricks hand.
It's so hard to explain this because it sounds like he is doing so well (which he is) but we still don't know if he even knows who we are. I tried to get him to say Mom or Dad today, but no response. Can't ask him to do a thumbs up because of the mitts. He did wiggle his toes for the nurse today though. He's getting there, I know he will be back someday :)
No fever...his blood pressure was good. Heart rate was a little high tonight, but not bad. Hoping for a CAT scan tomorrow and swallowing test.
All in all, I say he had a good day.
Thank you everyone for the prayers...please keep praying...love you all <3
He was a pretty fiesty today...did everything in his power to get the mitts off his hands...put his hand under his other arm...squeezed it to pull the mitt off. Put the mitt up to his mouth (which is covered by an oxygen mask) and tried to bite the mitt to pull it off. Amazing...he's barely coherent but is trying to figure out how to get these damn mitts off.
Tried very hard to get out of bed again...still doesn't comprehend what he is doing...seems to stare off into space...but knows he wants to get up.
During the evening visit, he was trying to get up...Patrick was trying to keep him down...Pat put his head down towards Stevens and they touched foreheads...and they stayed like that for about 10 minutes. Every time Patrick tried to move, Steven would get agitated...so, they just sat together :) Unfortunately I missed it. We can only have 2 people in the room at a time and Grandpa Duane was blessed enough to see this today. That's ok, I'm sure I have many more moments to come.
And the best part....he spoke today!! He was trying to get out of bed and Cindy told him...Steven, lay back down and he said "I don't want to"! Again...I missed it but he said it again later and I did hear him say it the second time.
He also shook his head no for Cindy's sister, Lisa. And he raised his hand to touch Patricks hand.
It's so hard to explain this because it sounds like he is doing so well (which he is) but we still don't know if he even knows who we are. I tried to get him to say Mom or Dad today, but no response. Can't ask him to do a thumbs up because of the mitts. He did wiggle his toes for the nurse today though. He's getting there, I know he will be back someday :)
No fever...his blood pressure was good. Heart rate was a little high tonight, but not bad. Hoping for a CAT scan tomorrow and swallowing test.
All in all, I say he had a good day.
Thank you everyone for the prayers...please keep praying...love you all <3
5/16/10 - Day 13 - AM Post
Just talked to Steven's nurse Bill, he said Steven had a good night. Got him to cough up some "stuff"...thank God! This is great news.
Also when Bill said Stevens name, Steven would look at him...yeah! He told me that a patient usually responds better to people they know and even more to a female voice...excellent! I'm going to be talking the poor child's ear off :)
He pulled out his feeding tube again. Not sure if he had the mitts on. They gave him some meds to calm him so they could put the feeding tube back in.
That's ok Steven, keep those nurses busy :)
Please keep praying...love you all <3
Also when Bill said Stevens name, Steven would look at him...yeah! He told me that a patient usually responds better to people they know and even more to a female voice...excellent! I'm going to be talking the poor child's ear off :)
He pulled out his feeding tube again. Not sure if he had the mitts on. They gave him some meds to calm him so they could put the feeding tube back in.
That's ok Steven, keep those nurses busy :)
Please keep praying...love you all <3
Saturday, May 15, 2010
5/15/10 - Day 12 - PM Post
Everyday seems to get a little bit better.
During the 12:00 visit today, Steven was definitely calmer than yesterday. Somewhat alert. Patrick was sitting on Stevens right side, I was on his left. Steven was closer to me on the bed. He heard his dad's voice and both of his arms went up and he rolled onto to his right side as to say "dad, pick me up".
Patrick put his hand up in front of Steven and said, grab my hand...and he did! He lifted both of his arms (mitts and all) and grabbed Patrick's hand. Did this twice for Pat, once for me.
He also put his hand(mitt) on my cheek and seemed to me like he tried to hug me :).
At the 5:00 visit, he was sedated. His blood pressure and heart rate were up even with the sedation. I asked his nurse Janey, and she said no worries. The numbers were normal for a TBI patient.
We were just asked to avoid any stimulation with him. Try to keep him calm, so that's what we did. Just let him rest :) He's had some busy days.
At the 7:30 visit, Cindy said his breathing was different than what we have seen so far. Short deep breaths. I'm going to talk to the nurses in the morning.
Baby steps...but he seems to be moving in the right direction :)
This song is from Cindy...
http://www.youtube.com/watch?v=3oT_TyK1Eh8
Michael Jackson..."I'll Be There"
You and I must make a pact
We must bring salvation back
Where there is love, I'll be there
I'll reach out my hand to you,
I'll have faith in all you do
Just call my name and I'll be there
And oh - I'll be there to comfort you,
Build my world of dreams around you
I'm so glad that I found you
I'll be there with a love that's strong
I'll be your strength, I'll keep holding on
Yes I will, yes I will
Let me fill your heart with joy and laughter
Togetherness, well that's all I'm after
Whenever you need me, I'll be there
I'll be there to protect you
With an unselfish love I respect you
Just call my name and I'll be there
Thank you everyone! We love you all <3
During the 12:00 visit today, Steven was definitely calmer than yesterday. Somewhat alert. Patrick was sitting on Stevens right side, I was on his left. Steven was closer to me on the bed. He heard his dad's voice and both of his arms went up and he rolled onto to his right side as to say "dad, pick me up".
Patrick put his hand up in front of Steven and said, grab my hand...and he did! He lifted both of his arms (mitts and all) and grabbed Patrick's hand. Did this twice for Pat, once for me.
He also put his hand(mitt) on my cheek and seemed to me like he tried to hug me :).
At the 5:00 visit, he was sedated. His blood pressure and heart rate were up even with the sedation. I asked his nurse Janey, and she said no worries. The numbers were normal for a TBI patient.
We were just asked to avoid any stimulation with him. Try to keep him calm, so that's what we did. Just let him rest :) He's had some busy days.
At the 7:30 visit, Cindy said his breathing was different than what we have seen so far. Short deep breaths. I'm going to talk to the nurses in the morning.
Baby steps...but he seems to be moving in the right direction :)
This song is from Cindy...
http://www.youtube.com/watch?v=3oT_TyK1Eh8
Michael Jackson..."I'll Be There"
You and I must make a pact
We must bring salvation back
Where there is love, I'll be there
I'll reach out my hand to you,
I'll have faith in all you do
Just call my name and I'll be there
And oh - I'll be there to comfort you,
Build my world of dreams around you
I'm so glad that I found you
I'll be there with a love that's strong
I'll be your strength, I'll keep holding on
Yes I will, yes I will
Let me fill your heart with joy and laughter
Togetherness, well that's all I'm after
Whenever you need me, I'll be there
I'll be there to protect you
With an unselfish love I respect you
Just call my name and I'll be there
Thank you everyone! We love you all <3
5/15/10 - Day 12 - AM Post
Good morning everyone...what a beautiful day it is today :)
I was not able to speak to Steven's nurse this morning. She is staying in his room because he is "active" right now. He's trying to get his mitts off (he has mitts on his hands because he was bad and pulled out his IV's yesterday).
The receptionist did say that he had a good night and his eyes were wide open!
He still has a long, long way to go, but I believe with my whole heart that he will be back better than ever
Bring it on Steve...We got this :) We will be with you every step of the way
Thought I would share one of my favorite songs...has a new meaning to me today
http://www.youtube.com/watch?v=rZtS6idkym0
"Everything I Own" by Bread
I would give anything I own
Give up my life, my heart, my home
I would give ev'rything I own
Just to have you back again
Is there someone you know
You're loving them so
But taking them all for granted?
You may lose them one day
Someone takes them away
And they don't hear
The words you long to say
I would give anything I own
Give up my life, my heart, my home
I would give ev'rything I own
Just to have you back again
Just to touch you once again
I was not able to speak to Steven's nurse this morning. She is staying in his room because he is "active" right now. He's trying to get his mitts off (he has mitts on his hands because he was bad and pulled out his IV's yesterday).
The receptionist did say that he had a good night and his eyes were wide open!
He still has a long, long way to go, but I believe with my whole heart that he will be back better than ever
Bring it on Steve...We got this :) We will be with you every step of the way
Thought I would share one of my favorite songs...has a new meaning to me today
http://www.youtube.com/watch?v=rZtS6idkym0
"Everything I Own" by Bread
I would give anything I own
Give up my life, my heart, my home
I would give ev'rything I own
Just to have you back again
Is there someone you know
You're loving them so
But taking them all for granted?
You may lose them one day
Someone takes them away
And they don't hear
The words you long to say
I would give anything I own
Give up my life, my heart, my home
I would give ev'rything I own
Just to have you back again
Just to touch you once again
Friday, May 14, 2010
5/14/10 - Day 11 - PM Post Part II
Wow...what a day!! The best part is I wasn't expecting it. I resigned myself to the fact that he just wasn't ready to wake up just yet.
After speaking to the nurse this morning, they were indecisive about the vent. Steven did not respond to any commands, so I figured it would still be a few more days.
I went for the 12:00 visit as always, and when I walked in to his room, his eyes were open. No warning from his nurse. Nobody but him and I in the room. I held his hand, asked if he could see me. He turned his head and looked directly at me.
It took me a minute to realize that his vent was taken out. His ICP drain was removed. The central line was taken out. My head was spinning. I didn't know what to do.
A couple minutes later, Cindy came in and she had the exact same reactions. Both of us in shock. We kept talking to him...his head would turn from me to Cindy and back again. After a little bit, Katie and Aunt Barb were able to come in. He would look at us like he was in a state of confusion...which he is.
I put my thumb up directly in front of his face and asked if he could see it. He looked at my thumb, then back at me. I said, Steven, I need you to do this...show me your thumb. He looked down at his right thumb (like a baby who has first discovered his fingers) and moved his thumb. Thought I was going to have a heart attack right there.
I continued to try to get him to move his thumb. Kept showing him mine. He decided he wanted to hold mine vs moving his and grabbed hold of mine. One of the greatest moments of my life.
We were able to spend about an hour with him in this state. After a while he started getting really agitated. Sitting up in bed. Grabbing his tubes. Sliding down in the bed, etc. Told the nurses and they came in to take care of him.
We went to wait in the hall while the nurses were in there. Come to find out he decided to beat the nurses up and pull out all of his IV's and his feeding tube 3 times. When he got all worked up, he got sweaty so none of the tape would stick to his skin. Took them an hour to calm him down.
Don't think the nurses will forget him anytime soon.
By no means is he out of the woods yet. He certainly has a long way to go...however, I feel today we made a big step forward.
Patrick said,"It's amazing when your worst nightmare becomes your best day". I thank God for today. I thank God for my wonderful family and friends.
Thank you for all of your support and prayers. Please keep praying. Love you all <3
After speaking to the nurse this morning, they were indecisive about the vent. Steven did not respond to any commands, so I figured it would still be a few more days.
I went for the 12:00 visit as always, and when I walked in to his room, his eyes were open. No warning from his nurse. Nobody but him and I in the room. I held his hand, asked if he could see me. He turned his head and looked directly at me.
It took me a minute to realize that his vent was taken out. His ICP drain was removed. The central line was taken out. My head was spinning. I didn't know what to do.
A couple minutes later, Cindy came in and she had the exact same reactions. Both of us in shock. We kept talking to him...his head would turn from me to Cindy and back again. After a little bit, Katie and Aunt Barb were able to come in. He would look at us like he was in a state of confusion...which he is.
I put my thumb up directly in front of his face and asked if he could see it. He looked at my thumb, then back at me. I said, Steven, I need you to do this...show me your thumb. He looked down at his right thumb (like a baby who has first discovered his fingers) and moved his thumb. Thought I was going to have a heart attack right there.
I continued to try to get him to move his thumb. Kept showing him mine. He decided he wanted to hold mine vs moving his and grabbed hold of mine. One of the greatest moments of my life.
We were able to spend about an hour with him in this state. After a while he started getting really agitated. Sitting up in bed. Grabbing his tubes. Sliding down in the bed, etc. Told the nurses and they came in to take care of him.
We went to wait in the hall while the nurses were in there. Come to find out he decided to beat the nurses up and pull out all of his IV's and his feeding tube 3 times. When he got all worked up, he got sweaty so none of the tape would stick to his skin. Took them an hour to calm him down.
Don't think the nurses will forget him anytime soon.
By no means is he out of the woods yet. He certainly has a long way to go...however, I feel today we made a big step forward.
Patrick said,"It's amazing when your worst nightmare becomes your best day". I thank God for today. I thank God for my wonderful family and friends.
Thank you for all of your support and prayers. Please keep praying. Love you all <3
5/14/10 - Day 11 - PM Post Part I
Our beautiful boy woke up today!!!! He looked me right in the eye! Not sure he knows who I am but that's ok. He will.
I asked him to show me a thumbs ups and he did. Looked right at his thumb and moved it. I asked him again and he grabbed my thumb the 2nd time :)
More later I promise...just wanted to thank everyone for EVERYTHING!
Love you all <3
I asked him to show me a thumbs ups and he did. Looked right at his thumb and moved it. I asked him again and he grabbed my thumb the 2nd time :)
More later I promise...just wanted to thank everyone for EVERYTHING!
Love you all <3
5/14/10 - Day 11 - AM Post
Looks like today is going to be a rough day.
I just spoke with Steven's nurse, Nancy. She said he was taken off the sedation meds and is quite agitated. He still is not responding appropriately to commands. Quite possible he has pneumonia.
We are waiting for Dr. Guo to come in and make some decisions. Whether or not to keep him on the vent. I really don't expect him to come off. And to possibly put him on some antibiotics.
Please keep praying <3
I just spoke with Steven's nurse, Nancy. She said he was taken off the sedation meds and is quite agitated. He still is not responding appropriately to commands. Quite possible he has pneumonia.
We are waiting for Dr. Guo to come in and make some decisions. Whether or not to keep him on the vent. I really don't expect him to come off. And to possibly put him on some antibiotics.
Please keep praying <3
Thursday, May 13, 2010
5/13/10 - Day 10 - PM Post
Well...I hate to say that there is not much to report. Unfortunately, Steven did not think today was a nice enough day to wake up :(
During the afternoon visit, he did start to come out of the sedation a bit. When the meds start to wear off, this is when we try to get him to respond to something. We only have a minute or two before he gets really agitated, and they have to give him his meds. This is horrible to watch, however, I do have to say it's not as horrible as a few days ago.
He is breathing on his own, but remains on the vent, again in order to be able to clear his lungs. The vent can assist him if necessary. There seems to be a lot of fluid that needs to be suctioned. He may possibly have the start of pneumonia. Will find out what the xray looks like in the morning.
We asked the nurse to take a look at his eyes today. I have to say it is the first time that I saw "something" in them. His eyes are equal and reactive...but this time they moved. Normally, his eyes just look forward. This time they "looked around". Hard for me to explain it. But I felt for the first time that he really is in there.
Katie told her parents last night that he is not ready yet. He needs more rest. She is positive he will come back to us. I have to say out of the mouthes of babes...she is sometimes smarter than her parents. She's right...this is about "us" wanting to talk to him, to know he will be ok. He still has more healing that is needed and we need to be patient. In time, he will be back. I have faith.
Thank you all...love you all...please keep praying
Michael Jackson..."Will You Be There"
But They Told Me
A Man Should Be Faithful
And Walk When Not Able
And Fight Till The End
But I'm Only Human
Everyone's Taking Control Of Me
Seems That The World's
Got A Role For Me
I'm So Confused
Will You Show To Me
You'll Be There For Me
And Care Enough To Bear Me
During the afternoon visit, he did start to come out of the sedation a bit. When the meds start to wear off, this is when we try to get him to respond to something. We only have a minute or two before he gets really agitated, and they have to give him his meds. This is horrible to watch, however, I do have to say it's not as horrible as a few days ago.
He is breathing on his own, but remains on the vent, again in order to be able to clear his lungs. The vent can assist him if necessary. There seems to be a lot of fluid that needs to be suctioned. He may possibly have the start of pneumonia. Will find out what the xray looks like in the morning.
We asked the nurse to take a look at his eyes today. I have to say it is the first time that I saw "something" in them. His eyes are equal and reactive...but this time they moved. Normally, his eyes just look forward. This time they "looked around". Hard for me to explain it. But I felt for the first time that he really is in there.
Katie told her parents last night that he is not ready yet. He needs more rest. She is positive he will come back to us. I have to say out of the mouthes of babes...she is sometimes smarter than her parents. She's right...this is about "us" wanting to talk to him, to know he will be ok. He still has more healing that is needed and we need to be patient. In time, he will be back. I have faith.
Thank you all...love you all...please keep praying
Michael Jackson..."Will You Be There"
But They Told Me
A Man Should Be Faithful
And Walk When Not Able
And Fight Till The End
But I'm Only Human
Everyone's Taking Control Of Me
Seems That The World's
Got A Role For Me
I'm So Confused
Will You Show To Me
You'll Be There For Me
And Care Enough To Bear Me
5/13/10 - Day 10 - AM Post
I'm not slacking today...Just spoke with the receptionist...the nurse, Diane, was working on Steven so she couldn't talk to me.
Mary the receptionist said, he is stable. No change. Still has the vent in. Did not wake up.
Patrick said..."today is a beautiful day to wake up". I completely agree.
Please keep praying
Mary the receptionist said, he is stable. No change. Still has the vent in. Did not wake up.
Patrick said..."today is a beautiful day to wake up". I completely agree.
Please keep praying
Wednesday, May 12, 2010
5/12/10 - Day 9 - PM Post
So...today was kind of a quiet day. Unfortunately, not much progress. He is still on the ventilator. When I spoke to the nurse today, she said she "thought" she heard the doctor say that Steven gave a thumbs up yesterday. She was not his nurse yesterday, but thought that's what she heard. This did not happen.
The doctors decided to change how he gets his meds. Instead of giving them and waiting until they wear off to give him more, they have decided to keep a steady amount in his system. They are hoping that it will allow him to come out of the sedation without being so agitated.
He did not open his eyes for me today, but he did for Cindy. She said that he did not seem as agitated as before and that he did blink his eyes when she asked him to. Hopefully he is starting to respond.
Hard to tell with the eyes...blinking his eyes is not considered to be "purposeful". Grabbing his tubes, trying to take off his gloves is considered purposeful. A thumbs up, wiggle your toes or stick out your tongue is considered to be on command. Tommorrow...let's hope for a thumbs up. We need that :)
I said today, all I need is 10 seconds of seeing "Steven" in his eyes...then he can go back to sleep until he feels all better. Just need to know that he's coming back to us.
Steven...this one's from your Mama...
Rascal Flatts "My Wish" http://popup.lala.com/popup/432627060773668416
My wish, for you, is that this life becomes all that you want it to,
your dreams stay big, and your worries stay small,
You never need to carry more than you can hold,
and while you're out there getting where you're getting to,
I hope you know somebody loves you, and wants the same things too,
Yeah, this, is my wish.
I cannot wait to dance with you <3
The doctors decided to change how he gets his meds. Instead of giving them and waiting until they wear off to give him more, they have decided to keep a steady amount in his system. They are hoping that it will allow him to come out of the sedation without being so agitated.
He did not open his eyes for me today, but he did for Cindy. She said that he did not seem as agitated as before and that he did blink his eyes when she asked him to. Hopefully he is starting to respond.
Hard to tell with the eyes...blinking his eyes is not considered to be "purposeful". Grabbing his tubes, trying to take off his gloves is considered purposeful. A thumbs up, wiggle your toes or stick out your tongue is considered to be on command. Tommorrow...let's hope for a thumbs up. We need that :)
I said today, all I need is 10 seconds of seeing "Steven" in his eyes...then he can go back to sleep until he feels all better. Just need to know that he's coming back to us.
Steven...this one's from your Mama...
Rascal Flatts "My Wish" http://popup.lala.com/popup/432627060773668416
My wish, for you, is that this life becomes all that you want it to,
your dreams stay big, and your worries stay small,
You never need to carry more than you can hold,
and while you're out there getting where you're getting to,
I hope you know somebody loves you, and wants the same things too,
Yeah, this, is my wish.
I cannot wait to dance with you <3
5/12/10 - Day9 - AM Post
Hi Everyone,
I apologize for the delay in posting this morning. I'm back to work and had a meeting this morning...I love and appreciate everyones concern :)
I spoke with Steven's nurse this morning. He had a good night. His vitals are good.
His nurse, Janie, said he responded to a command yesterday and they plan on extubating his vent today. I have not met this nurse yet. I am not sure how much I trust that this will happen today. We find that with different nurses and doctors on staff that sometimes we receive different information.
Even though she said he responded to a command, someone was with him up until 8pm last night and that did not happen. Maybe he did after everyone left. I will find out at 12 today that's for sure.
So if everyone could please say a prayer. I would love to go in today to find those awful tubes removed. I guess I shouldn't say awful as they are what saved his life...but if they are gone, then that would mean one step closer to recovery :)
Thanks everyone! Keep praying...they are totally working! Love you all <3
I apologize for the delay in posting this morning. I'm back to work and had a meeting this morning...I love and appreciate everyones concern :)
I spoke with Steven's nurse this morning. He had a good night. His vitals are good.
His nurse, Janie, said he responded to a command yesterday and they plan on extubating his vent today. I have not met this nurse yet. I am not sure how much I trust that this will happen today. We find that with different nurses and doctors on staff that sometimes we receive different information.
Even though she said he responded to a command, someone was with him up until 8pm last night and that did not happen. Maybe he did after everyone left. I will find out at 12 today that's for sure.
So if everyone could please say a prayer. I would love to go in today to find those awful tubes removed. I guess I shouldn't say awful as they are what saved his life...but if they are gone, then that would mean one step closer to recovery :)
Thanks everyone! Keep praying...they are totally working! Love you all <3
Tuesday, May 11, 2010
5/11/10 - Day 8 - PM Post
Well...he's getting there.
I was having a rough morning so the superstitious person that I am, I was a little worried that Steven's day wasn't going to be good either....
However...he did have a good day...when we went for the afternoon visit, we got a wonderful surprise... they removed the bandages from his head. Definitely didn't look as bad as I was expecting. Don't get me wrong...it's bad...tons of staples and stitches...but his beautiful head isn't completely destroyed. He will have quite a few scars. In the scheme of things, as long as he wakes up and has little or no brain damage, we can deal with scars. Little by little they are pulling away the bandages to reveal our beautiful boy.
They also talked about taking him off the vent. Right now he is on a very low setting...however, they cannot take him off unless he responds to commands from the doctors and nurses. Once he comes off the vent, they will no longer be able to suction anything from his lungs. He has to be able to cough when they tell him to. So...until he starts to respond, and can cough on command, he stays on the vent. The nurse today said we still have time. No trache just yet.
A great friend said, "Tell Steven's doctor that he was extremely stubborn and never did listen to commands". Ain't that the truth.
He did sit up again...opened his eyes a little bit. Still don't see him looking back at us...but I have faith. He will see us soon.
A great friend of Steven's called WYRK today and requested...
Danny Gokey "My Best Days Are Ahead of Me"
http://popup.lala.com/popup/504684639485079321
Thanks Chris
Thanks for all the prayers...please keep praying. Love you all <3
I was having a rough morning so the superstitious person that I am, I was a little worried that Steven's day wasn't going to be good either....
However...he did have a good day...when we went for the afternoon visit, we got a wonderful surprise... they removed the bandages from his head. Definitely didn't look as bad as I was expecting. Don't get me wrong...it's bad...tons of staples and stitches...but his beautiful head isn't completely destroyed. He will have quite a few scars. In the scheme of things, as long as he wakes up and has little or no brain damage, we can deal with scars. Little by little they are pulling away the bandages to reveal our beautiful boy.
They also talked about taking him off the vent. Right now he is on a very low setting...however, they cannot take him off unless he responds to commands from the doctors and nurses. Once he comes off the vent, they will no longer be able to suction anything from his lungs. He has to be able to cough when they tell him to. So...until he starts to respond, and can cough on command, he stays on the vent. The nurse today said we still have time. No trache just yet.
A great friend said, "Tell Steven's doctor that he was extremely stubborn and never did listen to commands". Ain't that the truth.
He did sit up again...opened his eyes a little bit. Still don't see him looking back at us...but I have faith. He will see us soon.
A great friend of Steven's called WYRK today and requested...
Danny Gokey "My Best Days Are Ahead of Me"
http://popup.lala.com/popup/504684639485079321
Thanks Chris
Thanks for all the prayers...please keep praying. Love you all <3
5/11/10 - Day 8 - AM Post
Just spoke with Steven's nurse, Diane, this morning. She was not the friendliest one yet...as my sister said, "Let's just hope she's having a bad morning". Yes, let's hope
Steven had a good night as far as the nurse knows. He did not open his eyes yet today, but she has only been on duty since 7 am.
Vitals are good. Did not have to put him back on any IV's.
ICU residents have not been through yet today.
Please keep praying...love you all <3
Song lyrics from Rise Against "Good Left Undone"
All because of you,
I believe in angels.
Not the kind with wings,
No, not the kind with halos,
The kind that bring you home,
When home becomes a strange place.
I'll follow your voice,
All you have to do is shout it out.
Thanks for sharing the lyrics to this song Annette...
Steven had a good night as far as the nurse knows. He did not open his eyes yet today, but she has only been on duty since 7 am.
Vitals are good. Did not have to put him back on any IV's.
ICU residents have not been through yet today.
Please keep praying...love you all <3
Song lyrics from Rise Against "Good Left Undone"
All because of you,
I believe in angels.
Not the kind with wings,
No, not the kind with halos,
The kind that bring you home,
When home becomes a strange place.
I'll follow your voice,
All you have to do is shout it out.
Thanks for sharing the lyrics to this song Annette...
Monday, May 10, 2010
5/10/10 - Day 7 - PM Post
Day 7...
I cannot believe at 11:30 tonight it will be one week already. Unbelievable. Just can't believe how fast it has gone by.
Well Steven made a lot of progress today...they took him off all of his IV's. He is receiving his meds via a syringe every few hours. The time in between each dose is longer each time.
They also changed the mode of his ventilation...with the new mode, it is forcing him to breath, but the vent will be able to take over if needed. They may change it back for the night to give him a rest.
He again, tried to sit up today. Swung his arms up and tried putting his leg down off the bed. This time, however, he did open his eyes. It definitely was not what I was expecting. His eyes opened about 1/3 of the way. They seemed empty to me. I guess I was expecting him to open his eyes and look at me and say "hi Mama". I've come to the realization that is definitely not going to happen yet.
They seem to be trying to prolong the time period in between giving him the meds hoping he will wake up a little easier. Unless he starts to wake up without being so agitated, they cannot take him off the vent.
I've decided that if the trache is necessary...so be it. Whatever he needs is fine with me.
And the last bit of news is not so good...they noticed on the last xray that the lower pocket of his right lung is not receiving enough air. So of course the concern is pneumonia. They did receive clearance from the orthopedic surgeons (due to spine fracture) to rotate his bed which will hopefully help clear up the lung.
Please keep praying...love you all :)
Here's to something more powerful than chocolate...HOPE
I cannot believe at 11:30 tonight it will be one week already. Unbelievable. Just can't believe how fast it has gone by.
Well Steven made a lot of progress today...they took him off all of his IV's. He is receiving his meds via a syringe every few hours. The time in between each dose is longer each time.
They also changed the mode of his ventilation...with the new mode, it is forcing him to breath, but the vent will be able to take over if needed. They may change it back for the night to give him a rest.
He again, tried to sit up today. Swung his arms up and tried putting his leg down off the bed. This time, however, he did open his eyes. It definitely was not what I was expecting. His eyes opened about 1/3 of the way. They seemed empty to me. I guess I was expecting him to open his eyes and look at me and say "hi Mama". I've come to the realization that is definitely not going to happen yet.
They seem to be trying to prolong the time period in between giving him the meds hoping he will wake up a little easier. Unless he starts to wake up without being so agitated, they cannot take him off the vent.
I've decided that if the trache is necessary...so be it. Whatever he needs is fine with me.
And the last bit of news is not so good...they noticed on the last xray that the lower pocket of his right lung is not receiving enough air. So of course the concern is pneumonia. They did receive clearance from the orthopedic surgeons (due to spine fracture) to rotate his bed which will hopefully help clear up the lung.
Please keep praying...love you all :)
Here's to something more powerful than chocolate...HOPE
5/10/10 - Day 7 - AM Post
Good Morning Everyone,
I just spoke with Steven's nurse, Amy. I don't think these poor nurses ever get any sleep. I have much admiration for the wonderful people who work in the medical field.
Steven had a good night. They are going to attempt to reduce his sedation and possible stop it today because he still does not want to wake up.
Patrick and I are trying to go back to work today. We'll see how far we get with that. My office is much closer to the hospital so I actually feel better being here. We are also trying to save our time for when he gets better and needs rehab.
Again, thanks everyone for your prayers. Love you all.
Steven...time to get up! Your Mama misses you :(
I just spoke with Steven's nurse, Amy. I don't think these poor nurses ever get any sleep. I have much admiration for the wonderful people who work in the medical field.
Steven had a good night. They are going to attempt to reduce his sedation and possible stop it today because he still does not want to wake up.
Patrick and I are trying to go back to work today. We'll see how far we get with that. My office is much closer to the hospital so I actually feel better being here. We are also trying to save our time for when he gets better and needs rehab.
Again, thanks everyone for your prayers. Love you all.
Steven...time to get up! Your Mama misses you :(
Sunday, May 9, 2010
5/9/10 - Day 6 - PM Post
Hi Everyone,
Well, Steven didn't open his eyes for me today but that's ok. We did get a little bit of good news. They removed another tube. The one that was draining the excess blood from his head wound. 1 less tube...yeah!!
They also reduce his sedation to 2mg/hr. I think I said that this morning...can't remember anymore.
He also took a few breaths on his own tonight. The nurse told us they were going to change the mode of the ventilator which will force him to breath more on his own. I am not sure if that has been done yet. I will get clarification in the morning when I talk to his nurse.
Baby steps today but that's quite all right.
Thanks again for all the prayers. Love you all <3
Well, Steven didn't open his eyes for me today but that's ok. We did get a little bit of good news. They removed another tube. The one that was draining the excess blood from his head wound. 1 less tube...yeah!!
They also reduce his sedation to 2mg/hr. I think I said that this morning...can't remember anymore.
He also took a few breaths on his own tonight. The nurse told us they were going to change the mode of the ventilator which will force him to breath more on his own. I am not sure if that has been done yet. I will get clarification in the morning when I talk to his nurse.
Baby steps today but that's quite all right.
Thanks again for all the prayers. Love you all <3
5/9/10 - Day 6 - AM Post
Happy Mother's Day to all of the wonderful mothers out there.
According to Steven's nurse, he had a good night. No ICP issues. His sedation has been lowered to 2mg/hr. Please pray that he can tolerate it.
While talking to the nurse yesterday, I told her that I am nervous about Steven waking up while I am there. I am a nervous nellie...anyone who knows me well know that. I'm worried that if he wakes while I'm there that I will jump/cry/yell/gasp and scare him. I have been trying to prepare myself.
The nurse said every morning they attempt to wake Steven. Dr. Bennett also tries when he does his rounds and he is pretty adamant in his attempts. So...there is a possibility that he will wake up when I'm not there. I think this would be best for all of us.
I struggle with this because I WANT to be there when he wakes up but I DO NOT want to scare him. I just want what's best for him.
So my point with my rambling is...I asked if they tried to wake him this morning and the nurse said not yet...waiting for the Dr. to do his rounds. Let's hope Dr. Bennett is very adamant today. Would be a great Mother's Day present. If not, that's ok. He's still tired...Let my boy sleep.
"You never know how strong you are...until being strong is the only choice you have..." Great quote from a great friend. Thanks Mindy B.
Steven is the strongest person I know.
Love you all...please keep praying <3
According to Steven's nurse, he had a good night. No ICP issues. His sedation has been lowered to 2mg/hr. Please pray that he can tolerate it.
While talking to the nurse yesterday, I told her that I am nervous about Steven waking up while I am there. I am a nervous nellie...anyone who knows me well know that. I'm worried that if he wakes while I'm there that I will jump/cry/yell/gasp and scare him. I have been trying to prepare myself.
The nurse said every morning they attempt to wake Steven. Dr. Bennett also tries when he does his rounds and he is pretty adamant in his attempts. So...there is a possibility that he will wake up when I'm not there. I think this would be best for all of us.
I struggle with this because I WANT to be there when he wakes up but I DO NOT want to scare him. I just want what's best for him.
So my point with my rambling is...I asked if they tried to wake him this morning and the nurse said not yet...waiting for the Dr. to do his rounds. Let's hope Dr. Bennett is very adamant today. Would be a great Mother's Day present. If not, that's ok. He's still tired...Let my boy sleep.
"You never know how strong you are...until being strong is the only choice you have..." Great quote from a great friend. Thanks Mindy B.
Steven is the strongest person I know.
Love you all...please keep praying <3
Saturday, May 8, 2010
5/8/10 - Day 5 - PM Post
So today was a good day I guess. Hard to say "good day" when your child is in ICU. But I say good day.
Steven remains stable. His vitals are good. His chest tube was removed today! His lung is good so far...Yeah! A chest xray was done to see if there are any problems from removing it and so far so good.
They also took an xray of his lungs and they are clear. Thank God...I was worrying about that. Initially they were rotating his bed to help keep his lungs clear but once they found the fracture in his spine, they stopped the rotation.
His sedation meds were reduced to 3mg/hr. Please pray that he can tolerate it. That would be a wonderful mothers day present to make it over another hurdle.
Thanks everyone for all the prayers...keep em coming! They are working!
Steven remains stable. His vitals are good. His chest tube was removed today! His lung is good so far...Yeah! A chest xray was done to see if there are any problems from removing it and so far so good.
They also took an xray of his lungs and they are clear. Thank God...I was worrying about that. Initially they were rotating his bed to help keep his lungs clear but once they found the fracture in his spine, they stopped the rotation.
His sedation meds were reduced to 3mg/hr. Please pray that he can tolerate it. That would be a wonderful mothers day present to make it over another hurdle.
Thanks everyone for all the prayers...keep em coming! They are working!
5/8/10 - Day 5 - AM Post
Good morning everyone. Cannot believe we are on day 5 already. Still hoping to wake up from this nightmare.
Just spoke with Steven's nurse, Amy. He had a good night. His sedation medication is still at 4mg/hr, however, he is still getting agitated. They did give him some Ativan (for anxiety). His ICP is not increasing though so that's a good thing. Will not know about the three bleeds in his head until they do another CAT scan. The doctor has not done his rounds yet to know when they will schedule the CAT scan.
His blood count is 9.5 and remains stable. We found out yesterday that the reason his blood count was so low is that his spleen is enlarged. The spleen, as the nurse explained, is eating up his blood. Nothing can be done at this point about his spleen due to his condition. So basically, again, it's a waiting game. Let's pray that his spleen does not burst. If that happens, he has even more serious problems.
No fever. His pupils are reactive. He tried to sit up again, the little stinker. I agree with his Aunt Barb...she said he wants to get up and dance. His first dance is going to be with me. I can't wait.
Keep praying...they are working. Love you all
Just spoke with Steven's nurse, Amy. He had a good night. His sedation medication is still at 4mg/hr, however, he is still getting agitated. They did give him some Ativan (for anxiety). His ICP is not increasing though so that's a good thing. Will not know about the three bleeds in his head until they do another CAT scan. The doctor has not done his rounds yet to know when they will schedule the CAT scan.
His blood count is 9.5 and remains stable. We found out yesterday that the reason his blood count was so low is that his spleen is enlarged. The spleen, as the nurse explained, is eating up his blood. Nothing can be done at this point about his spleen due to his condition. So basically, again, it's a waiting game. Let's pray that his spleen does not burst. If that happens, he has even more serious problems.
No fever. His pupils are reactive. He tried to sit up again, the little stinker. I agree with his Aunt Barb...she said he wants to get up and dance. His first dance is going to be with me. I can't wait.
Keep praying...they are working. Love you all
Friday, May 7, 2010
5/7/10 - Day 4 - PM Post
This is much easier for me to write after talking to the nurse in the morning because I have my notes that I took from the conversation. In the afternoon I have to go from memory, and I have to say right now my memory sucks...really sucks.
So today, we found out they are attempting to reduce Steven's sedation medication. Initially he was receiving 6mg/hr, yesterday it was reduced to 4, and today it was reduced to 2mg/hr. The reason...If they can get him off the sedation and he tolerates it, there is a possibility of avoiding having a tracheotomy. Initially we were told that he will need to be on a ventilator for at least 2-3 weeks. If that's the case, they would have to put in a trach after about 1 week because being on a vent long term could damage his larynx. So...again, if they can get him off the sedation, no trach. No trach means his hospital stay could be reduced by months. Not sure if it will work or not but the nurse said he deserves the chance to try.
After the meds were reduced, Steven got agitated. Because of this, I guess he thought it would be a good idea to sit up. His eyes were still closed...still sedated...but tried to sit up. He also tried to get out of bed. 1 leg off the side of the bed. I think he just may give me a heart attack.
They increased his meds back to 4mg/hr. Will try again tomorrow.
As Mindy said, 2 steps forward, 1 step back.
Please keep praying. Love you all
So today, we found out they are attempting to reduce Steven's sedation medication. Initially he was receiving 6mg/hr, yesterday it was reduced to 4, and today it was reduced to 2mg/hr. The reason...If they can get him off the sedation and he tolerates it, there is a possibility of avoiding having a tracheotomy. Initially we were told that he will need to be on a ventilator for at least 2-3 weeks. If that's the case, they would have to put in a trach after about 1 week because being on a vent long term could damage his larynx. So...again, if they can get him off the sedation, no trach. No trach means his hospital stay could be reduced by months. Not sure if it will work or not but the nurse said he deserves the chance to try.
After the meds were reduced, Steven got agitated. Because of this, I guess he thought it would be a good idea to sit up. His eyes were still closed...still sedated...but tried to sit up. He also tried to get out of bed. 1 leg off the side of the bed. I think he just may give me a heart attack.
They increased his meds back to 4mg/hr. Will try again tomorrow.
As Mindy said, 2 steps forward, 1 step back.
Please keep praying. Love you all
5/7/10 - Day 4 - AM Post
Well he made it through the first 72 hours. I am told those are the most critical. He has come this far and I have faith. I believe Steven is the toughest person I know. I believe he is going to make it through.
I spoke with Steven's nurse this morning. He had an uneventful night. No fever!! He is tolerating his nutrition well. He is now moving everything. His hands, legs, etc. His pupils are equal and reactive.
They will be taking him for an x-ray of his spine this morning. They have decreased his sedation, however, he seems to need it. Gets aggravated when it is decreased. Ya think?? I can't even imagine being in that kind of pain. Let the boy sleep.
His blood count did finally come up to 9.8. Took quite a bit of additional blood but it did finally come up.
Dr. Bennett, my hero, was there checking on Steven when I called so I was able to speak to him. His observations are...Steven is stable but critical. His Inner Cranial Pressure (ICP) is still high. His immune system is not good, so they are having a hematologist look at him for their opinion. His platelet count is low. He is minimally sedated. However he said he is HOPEFUL!!!! Me too!
Please continue praying...I believe the prayers are working <3
I spoke with Steven's nurse this morning. He had an uneventful night. No fever!! He is tolerating his nutrition well. He is now moving everything. His hands, legs, etc. His pupils are equal and reactive.
They will be taking him for an x-ray of his spine this morning. They have decreased his sedation, however, he seems to need it. Gets aggravated when it is decreased. Ya think?? I can't even imagine being in that kind of pain. Let the boy sleep.
His blood count did finally come up to 9.8. Took quite a bit of additional blood but it did finally come up.
Dr. Bennett, my hero, was there checking on Steven when I called so I was able to speak to him. His observations are...Steven is stable but critical. His Inner Cranial Pressure (ICP) is still high. His immune system is not good, so they are having a hematologist look at him for their opinion. His platelet count is low. He is minimally sedated. However he said he is HOPEFUL!!!! Me too!
Please continue praying...I believe the prayers are working <3
Thursday, May 6, 2010
5/6/10 - Day 3 - PM Post
Sooo...today was a tough day.
A CAT scan was done today on Steven's belly to see if there was any internal bleeding. He was given blood because his blood count was down, however, even after the transfusion his blood count did not increase. So the concern was...is he is bleeding somewhere? The CAT scan came back that he does not have any internal bleeding. We did find out that he now has 2 additional bleeds in his head which makes a total of 3. Initially we only thought he had one. They have been there since the accident. Two of them have increased bleeding, 1 has decreased. If the bleeding doesn't decrease, they may have to put in another drain.
Along with that we found out that Steven has a fracture of his T2 vertebrae. The orthopedic surgeons stated that there is not much that can be done right now due to the state that he is in. They can just watch it keep us updated on the status.
On the bright side of things, Steven moved today. When the nurses took him for the CAT scan, one of the meds had to be decreased, which took him out of the coma somewhat. When they did this he moved his arms up in the air, moved his legs, coughed and tried to grab some of his tubes. This is great news. This means he has ability to move! I'm very happy with that, however, I did ask the nurse to please not do that again. Scared me. I was kidding
I noticed more movement in his eyes today. They fluttered a little bit more. The swelling in his face has decreased. His fever is still there but lower than yesterday. About 100.8.
His Inner Cranial Pressure has to be under 20. This is the amount of swelling in his brain. When I am there and his ICP increases, a beeping noise comes on the monitor. I try talking to him to calm him and his pressure decreases from the sound of my voice. I love this...makes me feel like I am helping him in some way.
That's it for today. More than enough for me that's for sure.
Thanks again everyone...love you all.
A CAT scan was done today on Steven's belly to see if there was any internal bleeding. He was given blood because his blood count was down, however, even after the transfusion his blood count did not increase. So the concern was...is he is bleeding somewhere? The CAT scan came back that he does not have any internal bleeding. We did find out that he now has 2 additional bleeds in his head which makes a total of 3. Initially we only thought he had one. They have been there since the accident. Two of them have increased bleeding, 1 has decreased. If the bleeding doesn't decrease, they may have to put in another drain.
Along with that we found out that Steven has a fracture of his T2 vertebrae. The orthopedic surgeons stated that there is not much that can be done right now due to the state that he is in. They can just watch it keep us updated on the status.
On the bright side of things, Steven moved today. When the nurses took him for the CAT scan, one of the meds had to be decreased, which took him out of the coma somewhat. When they did this he moved his arms up in the air, moved his legs, coughed and tried to grab some of his tubes. This is great news. This means he has ability to move! I'm very happy with that, however, I did ask the nurse to please not do that again. Scared me. I was kidding
I noticed more movement in his eyes today. They fluttered a little bit more. The swelling in his face has decreased. His fever is still there but lower than yesterday. About 100.8.
His Inner Cranial Pressure has to be under 20. This is the amount of swelling in his brain. When I am there and his ICP increases, a beeping noise comes on the monitor. I try talking to him to calm him and his pressure decreases from the sound of my voice. I love this...makes me feel like I am helping him in some way.
That's it for today. More than enough for me that's for sure.
Thanks again everyone...love you all.
5/6/10 - Day 3 - AM Post
Received a call from Steven's nurse at 7:40 am. He was stable all night. His fever is down to 100.3. They gave him the blood transfusion and platelets last night, however his counts did not go up. The drains from the head injury are not putting out an increased amount of blood so they are concerned that he has a delayed injury in his stomach or pelvis. They will be doing a CAT scan of his stomach and pelvis this morning to see if he has any internal bleeding. The nurse said she will call me after the CAT scan to give me the results.
We have been told...2 steps forward 1 step back. Let's pray this is his only step back.
Please continue to pray for him.
We have been told...2 steps forward 1 step back. Let's pray this is his only step back.
Please continue to pray for him.
Wednesday, May 5, 2010
5/5/10 - Day 2 - PM Post
Steven remains stable. Doctors are happy with his progress so far. Looks like some of the swelling in his face has decreased. Will receive some blood and platletts this evening. He still has a fever but it has gone down a little since yesterday. Started a feeding tube and he is taking it well. May be able to remove his IV if the feeding tube works out.
Taking this one step at a time. Praying for a good night.
Again...thank you everyone for your prayers...I do believe they are working
Taking this one step at a time. Praying for a good night.
Again...thank you everyone for your prayers...I do believe they are working
5/5/10 - Day 2 - AM Post
Good Morning...I spoke with Steven's nurse this morning. Steven remains stable. The doctor stated that he is happy with his progress so far. His fever is down...thank God. His hemoglobin is down slightly...which means he will probably need a transfusion in the near future.
I'm grateful he made it through the night.
Will update more this evening after I get to see him.
Thanks again for all of the prayers.
I'm grateful he made it through the night.
Will update more this evening after I get to see him.
Thanks again for all of the prayers.
Tuesday, May 4, 2010
5/4/10
To all of our friends and family...
We decided to start a blog about Steven so that everyone who has been so unbelievably kind to our family can be updated on his prognosis as we start the next chapter of his life. I also wanted to do this to have a record of our progress, and this way once he is better, he will have a better understanding of what happened. I hope to update this on a daily basis.
As most of you know, Steven was in a horrific motorcycle accident last night, 5/3 at approximately 11:30 pm. Channel 4 has the story on their website at http://www.wivb.com/dpp/news/local/Bike-strikes-guardrail-throws-driver
Steven has a long road ahead of him. He had a left temporal bone fracture and bleed. The surgeon, so I'm told, is one of the best in the area....boy I hope their right. He had to have a mesh plate inserted to repair/replace his skull. He really did not have any other injuries which is unbelievable in my opinion.
Currently he is in a coma due to the head injury. They will continue to keep him in the coma until the swelling in his brain comes down. Once the swelling decreases, we will have a better understanding of what his fate will be. The doctors state that it will be approximately a week before the swelling decreases.
There are so many tubes in him that I was unable to count them all. He has a fever, which did come down slightly today. His lung collapsed while trying to put in a central line for the meds., so they inserted a chest tube to fix the lung. They did say there was a high possibility of this happening.
So...to end today, please pray for him. He needs them more than ever.
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